Hi, I had a look ar this community a while back but was not ready to participate then, I now feel ready to have a go and have joined this group.
I have Myeloma and am about 2 years into remission after a first course of treatment. I have been advised that even after both vaccine doses I am still only about 40% protected and should limit my exposure to people and places. I would like to join a new U3A group but they expect to meet rather than zoom. Am I destined to be restricted forever from such activities?
Does anyone else feel the same concern or have a view on this situation?
Hi Ubuntu,
Welcome to the forum and I’m really pleased you’ve put forward your first post. Life as a myeloma patient with Covid kicking around is a tricky one. I am 5 years post treatment now, feeling very well, and so was very surprised to be classed as extremely clinically vulnerable - it did make me think, so is this it forever?
It is such an individual choice regarding what you are happy doing and what you are not happy doing. As it happens, I got COVID about a month ago and I was perfectly fine - a bit of a runny nose and headache but not much else. But I am one story in a million, with many other people having very tragic outcomes. It makes deciding what to do so incredibly difficult and I think only you can find the right road that works for you. Whatever you decide to do, I hope you find a path that gives you happiness and good health.
All the best
Greg
Hi Greg,
Thank you for your thought on this conundrum brought about by covid. I have been forming my own views on how I can protect myself and others since the start of the pandemic and this has been fairly straightforward, by not relaxing anything until I feel it is safe to go so. I think I shall wait to see how indoor activities are being conducted, case by case and then see how I feel about them.
I'm glad you were not affected very badly when you contracted covid, it is really unknown how one could react.
Being relatively new to myeloma, I have not talked to many other sufferers and I have not wished to invade their privacy by asking about it unless they have offered in some way. I hope this is the right environment to ask things without upsetting anyone and I am willing to share my experiences if anyone asks.
I am relatively well at present but in my seventies and unsure if anyting is related to my age or myeloma.
I see you are a community champion and would like to say thank you for being here for me and others.
Kind regards
Ubuntu
Hi Ubuntu,
Many thanks for your kind words and this is definitely the right space to ask any questions you might have and also to offer your own experiences to others, the peer support aspects of this forum can often be very helpful.
I am quite a bit younger (42 now, 36 on diagnosis) but I will certainly try to help with any questions you might have. I have put a bit of detail into my profile to give others a bit of an idea as to what I have experience of, but there was lots more that I came across on the myeloma journey, so I would be very happy to help in any way that I possibly can so please feel free to use this space in any way that you would like.
All the best
Greg
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