Husband with Myeloma

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Hi, I am Helen

My husband has Myeloma diagnosed 10years ago and more recently renal cancer which has been treated with surgery. The myeloma has been really well controlled and his oncology team are the best. We are at a bit of a cross roads with the illness and this is the first time I have not known what to say to him or do for him.He is really quite poorly at the moment, recovering from the surgery and myeloma is now not con trolled, so he is withdrawing he has been so positive over the 10years. 
not sure what I want from this forum...just to chat probably Grinning

  • FormerMember
    FormerMember

    Hi,

    it’s so nice to hear that your husband has been living with MM for 10 years. Google is so scary when it comes to statistics, 

    I have no advice as I am new to this group due my mother being newly diagnosed this month.

    Can I ask what hospital your husband has been treated at? My mother hasn’t got an oncology team and the Haematology team so far haven’t been very good. I hope you don’t mind me asking for advice off the back of your post. I wish your husband a speedy recovery from his op and that the positivity he’s had comes back once he is feeling better. 

    Many Thanks, 

  • Hi,

    Hubby is treated at the MacMillan cancer Centre in London. It’s part of UCLH.

    The  team there are amazing, we have been very fortunate,  sadly our local hospital was not very good but did refer him, we haven’t looked back care wise.

    The Statistics can be very alarming and are often based on data from several years ago never the less they do show the massive steps forward and Treatments are evolving all the time.

    I hope your mum gets the treatment she needs, never be afraid to ask your consultants questions or take some of the information you find out to them to check out

    Wishing  you and your mum good health 

  • Hi Helen,

    I am really sorry to read about how your husband is doing. I don’t have any practical experience of your situation so can’t really offer any help, I just wanted to wish you both all the best. Dealing with one cancer is hard enough so dealing with two must be incredibly difficult. With the myeloma, all I can really say is to try and have confidence that there are lots of treatment options out there and lots that can be really successful even after lots of other treatments and when patients are really poorly. I know it’s really easy to write and incredibly hard to do in practice, but sometimes all you can do is keep ploughing through as best you can. The bad times can’t and won’t last forever.

    If talking to other people who have a loved one struggling with cancer would be helpful, you can always try the Family and friends - Discussion Forum

    part of the forum too.

    Wishing you both the best

    Greg