Newly diagnosed

I believe yout consultant is referring to Smoldering Myeloma (you can search all the info regarding it). About the PET-scan, they want to check if you have any plasmacytomas(tumors from plasma cells that MM causes) in any place of your body (that MRI could not reveal). Then, your consultant will determine if you need to start treatment to battle myeloma( if the PET-scan reveals anything), or if you need treatment in order to prevent/slow down the development of active myeloma.

How about your blood tests? Hemogloubin, white cells, M-protein, etc?  Are they ok?

Hi all i have been told is my protein levels were a tad high, in fact after the mri the consultant actually did not think the bone biopsy was required but sais i could have one if i wanted, i choose to have it, and this showed myeloma cells in my marrow,from there i had a pet scan where he then said i was borderline, when i asked what this meant he was a bit vague in saying well there is a lot of myeloma in my marrow but it does not appear to have caused any bone or organ damage yet, its the yet i`m concerned about, i have lost confidence in my consultant as i do not appear to be given any real stats on bloods, light chains etc, so would i be able to ask for a second opinion or reffered to a myleoma specialist rather than a general haematologist, just dont know best pathway really so looking for avice or experiences of others whether this is general or whether i need a blood cancer specialist ? thanks

Hi!

It sounds like smoldering myeloma. An hematologist-oncologist/myeloma specialist would be ideal. Many general hematologists have never seen a case in their lifetime, thus they don't really how to explain to you. 

I recommend you find a specialist as it's important for you to be monitored, and hematologist-oncologists are the ones that specialize on myeloma

Best wishes x