Good Morning everyone. I’m seeking advice, help, support - basically anything that can be given, so that my mother and myself can help my 75 year old father cope better with what’s becoming a bad situation.
He was diagnosed completely unexpectedly last October. He’s received chemotherapy and radiotherapy & a couple of weeks into lockdown was told that he was effectively in remission.
Since however - he’s developed back problems. Haematology have already arranged an MRI scan which is due to take place next week. The pain is severe & in order to cope with it , he’s been needing to take a lot of painkillers. He’s diabetic, has high cholesterol and high blood pressure. This is the 1st problem - my mother is desperately worried that he’s taking to many but he won’t listen to her.
We also think that he’s suffering from depression . This seems to be due to a combination of pain and because of the shielding process . He’s not willing to eat very much at all . He’s unwilling to do anything to help around the house & is very, very difficult to live with. This is made worse because he’s not sleeping properly due to the pain caused by the back.
I think he recognises that something isn’t right because quite independently, he’s made an appointment to go and speak with someone for counselling which I think is a major step in the right direction. My mother however is putting all of her hopes on this being a quick solution & won’t listen when I’m trying to get her to realise that this is likely to be a long process.
Any advice, any guidance, anything at all which can help, i would appreciate. I should add that we live in Wales - where the lockdown still remains nearly fully in place
Hi Mrsgavlar,
Welcome to the forum, although I am really sorry to read about your Dad and what you are all going through at the moment. It sounds like it is a really tough time for you all at the moment. I think the counseling will help, it is a good step in the right direction, although I think you’re probably right to think it won’t be a quick fix. I’m wondering if your Dad’s pain and lack of sleep is contributing to his moods? It’s definitely proven that physical pain and exhaustion can contribute to mental health problems. I’m hoping that the back pain is nothing sinister and that the MRI gives you some insight into what’s going on and a way forward to hopefully improving things. It is certainly true that a myeloma diagnosis can result in significant emotional turmoil that can take time to surface and time to process. Shielding definitely doesn’t help with all that.
I guess the best I can say is to try to hold in there. A lot of what you describe can often happen after such a diagnosis, especially if the patient is experiencing pain. I am hoping that counseling will give your Dad some space to process some things and I’m also hoping that you’ll get some positive way forwards with the back pain. I think it’s also important for you and your Mum to carve out space for yourself. As harsh as it sounds, you two also need space to look after your own mental health and your Dad should try to understand that this diagnosis impacts you as much as it does him. I think it is important to tell him what is acceptable and what isn’t acceptable regarding his behaviour and hopefully he will understand and try to focus on forging a path forward together. Unfortunately, these things do take time, but I’m really hoping you’ll see some positive developments soon. My heart goes out to you all,
Greg
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