Hi, I'm not new to MacMillan, I had breast cancer last year, but I'm new to the myeloma forum. Around August/September last year my hubby started with frothy urine. I was in the middle of my treatment so he didn't say anything. Also has protein, eventually saw our GP early November who referred for a urgent appointment to nephrology.
He had the appointment September this year, urine and blood tests. The consultant phoned him mid October to say he was referring him to haematology as he had protein that was coming from his bone marrow.
We've seen the Nephrology urine results, given to us via the GP receptionist yesterday.
Urine light chain level:
Positive: Bence Jones protien detected.
Urine Paraprotein level:
Free kappa light chains. Intact IgG kappa also present.
No figures for either but figures are on the rest of the urine tests. Not had the blood test results done on the same day.
Do you think it's likely it will be multiple myeloma, I have read its rare to have a false positive for Bence Jones.
Any help would be appreciated, many thanks
Hello Pat. Good to hear of the reduction of light chains! What combo treatment are you having? Any side effects? Thank you.
Helllo. I have been on daratomumab and lenalidomide since March. Have few side effects save the runs and from time to time poor appetite. `Pat
Thank you Pat, appreciated. You take dexamethasone as well? I have read of this trio as available as a pack in London
Nothing, bloods redone in 6 months, telephone consultation a week later.
It still doesn't solve the problem of the 17 months of frothy pee and paraproteins in the pee too, which has led to having cataracts on both eyes. Detatched retina in one eye November last year, no signs of cataracts. Diagnosed with cataracts on both eyes 1 year later.
Although he hit retirement age in October, he has stayed on, he's a driver because our only income would be his state pension, I'm still recovering from my own cancer.
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