Hey all,
my mum has just been diagnosed with MM. her bone marrow results came back positive, and it has shown up at the base of her back, which is causing her incredible pain - the incredible pain she is feeling has been since her biopsy. So to be honest we were in shock when they said she had it in that area as we were convinced they had hit a nerve ( that’s what she says it feels like )
She can barely weight bare & the department she was with advised her to go to A&E Friday via ambulance so they could manage her pain. We were there 15hrs, she had Oramorph and Diazepam which she said didn’t touch it. She just gets mild relief from Co-Codemol. They said the cancer in her back ( I’m not sure if it’s classed as a tumor? Excuse my ignorance it’s all very new to me ) Was larger than what her department she’s dealing with had made out.
She has been told by A&E she needs radiotherapy, and 4 diff types of drugs - Cyclophoshamide, Lenalidomide, Bortezomib & Steriods & also a stem cell transplant.
I guess my question would be, is this generally quite “normal” to have areas appear that need attention? We do not have the results back yet to say if it’s aggressive. Just very much sent us in to a panic - but after reading some of your comments it does seem it’s not an automatic sentence. I guess im Looking for reassurance that no one can really give me, but just wondered if anyone had experience this at the start..with the confirmation it’s in the bone marrow and already having it in a place on your body that was successfully treated?
Any help would be appreciated, and thanks in advance xx
