Hi This is my first post so please bear with me! I was diagnosed in 2017 had VCD with VGPR then in 2019 TCD with again VGPR but not quite as good. I started again on Ixazomib with Lenalidominde and dexamethasone in Feb this year with very bad joint and muscle pain in first cycle on full dosage. This was dropped in 2nd cycle but overall there has been very little improvement. Haematologist wants to put me on isatuzumab instead. I gather it's quite new and can't find much out about it. What I can find is quite scary - side effects bronchitis, pneumonia, upper respiratory tract infection, infusion reactions and neutropenia just to name a few! Has anyone else any experience of this drug? The results are supposed to be good as long as the side effects don't finish you off! lol I'm hoping the haematologist rings me for a decent talk about this before he gives me an appointment for my first iv infusion. I've never actually met this guy as my usual Consultant has been away since March/April and my appointments have been by phone due to covid. I'm sure he's fine but it's a bit nerve wracking when you don't really know much about each other besides what's on paper!
Thanks, Leda
