My Mum was diagnosed with Myeloma in 2018, which became symptomatic earlier this year. She began a treatment protocol of 15mg Lenalidomide with 40 mg Dexmethasone in August and on Day 12 experienced severe vomiting, nausea and diarrhea. She was hospitalised to administer fluids and electrolytes but they didn't provide any nutritional support for 15 days, despite the severe side effects being continuous, so she has lost an awful lot of body mass and is now very weak. All samples have tested negative for infection and ct scans and a partial colonoscopy have show inflammation throughout the gut and also the presence of ulcers. It is now day 30 and she still continues to experience diarrhea and can't keep and food down and the hospital seem clueless as to how to stop it. I appreciate this is an extreme reaction but wondered if anyone has experienced anything similar or heard about any similar cases? We need to stop the diarrhea ASAP as otherwise she will get weaker and weaker. She hasn't had any Lenalidomide or Dexamethasone for 30 days ( since her admission) but the bowel damage doesn't appear to be getting any better. Any help appreciated. Thank you.
