Hi,
My mum (multiple myeloma) was told by the haemotology doctor to cease her first cycle of Lenalidomide/Dexamethasone from Thursday, so 3 doses since, believing toxicity. I noticed tonight she had a non-itching rash all over her belly, the tops of her thighs, breasts & down one of her arms. It's not significantly hotter than the non rash parts & her temperature is still 36.4°C like it was this morning. I rang the hospital helpline & they advised an anti allergy tablet so we had Cetirizine in the house & I gave her one of those. They said to monitor her closely & call back if symptoms worsen. Has anyone had any experience of the days after toxicity or even neutropenic sepsis, which it kindly warned you about on the advice card the hospital number was on!
Thanks
Steph
Yes to the rash Steph. It was weird as it came so suddenly and like you say no change in temperature, no itching but within hours hubby was covered from head to toe. His haematologist said he felt sure it was a reaction to the Allopurinol- is your mum on that? He’d been on it over two years before this with no problems. It went almost as quickly as it arrived if that helps.
Much love to you and your mum.
June
Hello June,
Sadly my mum passed away on the 25th May in Pinderfields Hospital due to Covid 19/pneumonia. The rash turned out to be sepsis so was admitted on the 20th April because her blood pressure was through the floor. She managed to fight off the sepsis but unfortunately when she was recovering on a general ward she contracted Covid-19 & pneumonia & didn't have enough strength to fight that off too. Today is the funeral & I've found it very tough since she passed away, as I can't help but feel like an adult orphan now after losing dad last year. Best wishes to yourself & sorry my message isn't in better circumstances. Keep safe.
Oh my dear I am so very sorry to hear about your mum and I hope that today has gone as well as possible for you.
We must be very close to each other as our main hospital is Pinderfields too although we use Pontefract wherever we can.
if you need to chat please give me a shout.
I send my best wishes to you and the family and again I ma so very sorry for your loss.
June x
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