Hello Kerry I think I noticed a post from you earlier in the week saying that you have just been diagnosed this week? I'm supposing you have been through all sorts of tests and appointments to get to this point. I remember that it was all totally overwhelming and exhausting. As you say there is a moment of relief of sorts that you have an answer but that is very quickly replaced by a huge amount t of anxiety and almost disbelief. Do you think your headaches might be caused by the worry you probably feeling right now? Are you sleeping or lying awake. I remember those very early days just feeling so tired and not eating or sleeping much. For you as well it's a very difficult time of year to get this kind of news isn't it? Everyone else is rushing around getting ready for Christmas and you're trying to adjust to this new situation that none of us ever wanted to be in. Be kind to yourself. Dont Google too much. Stick to reputable sites. Theres a lot of out of date stuff out there.
Once you have a treatment plan in place I promise you will begin to feel more in control. It takes time. Little steps.
Sure there are a lot of good people on the site who will offer support and a bit of help along the way
Thank you so much for your message. I agree that my headaches could be due to worrying. I'm not sleeping well at the moment still. The hospital gave me a book on Myeloma to read but I have only read couple of pages so far.
I have looked up where there are groups I could go to, I have found one at a hospital near to me 1 evening a month, do you suggest I go to it? The main thing I can't get my head around is that it is Cancer, but not terminal.
I'm trying not to be a nuisance asking questions on here.
Please don't ever think you're being a nuisance asking questions on here! I'm quite sure any member on here remembers just how they felt at first.
It does seem quite quiet on here at the moment but that may be because it's a busy time of year with Christmas approaching . In a way that does illustrate that even with a diagnosis of myeloma eventually normal life does resume to an extent. I find it helps to think of it as a long term illness that will require treatment at times to put it back in its box so to speak.
If you have a local support group then that might help a lot to meet and chat with people who really understand what you're dealing with.
I'm guessing you have had Myeloma for some time now and probably gone through the transplant phase by now ?
Hoping it all went well and you are not getting those headaches anymore. There is will always be something to worry you, I think you have to pretty thick skinned not to do some worrying, my advise is to stay off Google if you're looking for answers, go to your team or ask someone in the group.
