Mesothelioma Bereavement Support Group

Great idea! After dad being constantly told his symptoms were something he just needs to put up with and the way he was feeling was just him, he was made to feel like a moaner and became withdrawn. A few weeks later he was admitted to hospital, pleural effusion then discharged saying he was OK.  Then it happened again with a diagnosis of end stage pleural mesothelioma. He was never well enough to have any quality time with his family and died 4 months later. Exactly 12 months ago today we lost dad. Like everyone we are totally lost at this 1yr anniversary. Hugs to all going through this process x

Dear Zeta

Bereavement support is so important especially as many of us have such a short time with our loved ones after diagnosis.

Mum died 10 days ago, 21 weeks after diagnosis.  Such a devastating disease that we have no idea how she contracted.  I feel more research is needed.  She had a pleural effusion in April and was never well after that.

She died peacefully in hospital with all her family with her, so that is the most important thing for her.  We have to wait now for the papers before she can finally be laid to rest and we try to carry on without her.

Sara

Excellent idea Zita - We knew my husband was unwell from maybe May last year but was actually diagnosed with peritoneal mesothelioma in May this year after a biopsy.  Apparently this is far more rare then the lung meso.    His main problem was serious lack of mobility and appetite and weight loss.   Fortunately he suffered little actual pain, so when in his chair was more like his normal self for which I was very grateful.   However, he was taken into hospital on Sunday 27th September being unable to keep food down and passed away on Tuesday 29th September.  I and my 2 daughters were shell shocked and devastated.   All staff on the ward he was on were absolutely brilliant and cared so much for both him and us his family.   However, I am feeling angry at the moment as, despite giving the name of his specialist and specialist nurse, and our macmillan nurse, none of these people were informed.   I received a call from the Mcmillan nurse yesterday to ask how he was !!!   and a call from the specialist mesothelioma nurse today, also asking how he was coping.   They were both completely shocked and embarrassed by the conversation.   I have no complaint with the medical care, but will eventually be asking our local hospital how these important people in our lives had still not been informed of his death a week later.    Has this happened to anyone else, or is it  just our incompetent  local hospital.   I would hate this to happen to anyone else.     Jean

Hi everyone in this group. I lost my husband to mesothelioma almost 2 years ago now.   I am just wondering lately how long does this feeling of crushing heartbreak last.   I’m told that things get easier in time but I things to be going backwards.  I seem to be in a stage of action replay of all the events from the 6 months before he passed to now.   I know we have to move on but  don’t seem to have any control over my thoughts.  Do others feel like this?  Thank you in advance.

Hi and welcome to the online community but I'm very sorry to hear that you lost your husband to mesothelioma two years ago. 

I hope you don't mind me replying to you but as this thread is over 5 years old, and the posters may no longer be part of the online community, could I suggest that you join the Bereaved spouses and partners forum group where you can talk to others who have lost loved ones to cancer.

If you'd like to do this, just click on the link I've created and then choose 'click to join' on the page that opens. You can then introduce yourself and post after selecting '+New' and join in with existing conversations by clicking on 'reply'.  

Sending a gentle ((hug))

• Great idea lost my Steve last July really went quickly seem like we had hardly any time together would be great to keep this forum going.