Mesothelioma Bereavement Support Group

Hello  Zita, I think your idea of  a  support group is much needed and I would love to join it.  My husband is one year into this disease and  know there will come a time when I will need people that understand because they have been through it.  So please go ahead and start your

blog and please add me. Take care I can't imagine how you feel. xxxxxxxxxxx

Hello Zita, what a good idea you have, I lost my Husband two days ago, he fought the dreadful disease for 10 months three days, I just hold on to the thought that he's not suffering any more, when I went to identify him yesterday he looked at peace ,he looked liked his old self which was a comfort.

Dear canary44 thanks for your post. I hope you and your husband are coping with this terrible illness. All I can say is live everyday to the max, my mum and I lived, laughed and cried, then lived and laughed some more. I told her everyday that I loved her and it was the last words she heard, I take comfort in that. Make more memories as this will help you through this journey. Take care and come onto this site for support, there are lots of people who unfortunately are going through the same x

Dear Diva54, thank you for your response. I am so very sorry about your husband. Things seem unreal at first and there are hurdles to climb over, but you will be able to cope. You have looked after your husband with all the love in the world, he takes that with him and he is no longer suffering. Look after yourself as you will be so busy with sorting things out. Please come onto this site to get help, advice, support or just to rant or pour your heart out, there are lots of lovely people who have and are going through what you are, someone who really understands. Take care diva, stay strong. Thinking of you 

Hi Zita,

           Only seventeen weeks after diagnosis I lost my beautiful mum a week ago. I now have a new set of emotions to deal with, anger, disbelief and intense sadness that this cruel and relentless disease has taken her. I think it's a great idea as like you say there are a further set of challenges of which I have no idea what to expect.

We don't know how mum would have contracted this disease so there are also so many un answered questions .

I am so sorry for your loss and thank you for finding the strength to continue to support others at what must be one of the most difficult times of your life.

Alison x x

Dear Alison, I am so sorry to hear about your mum. It must seem like you are on a horrible roller coaster, I am sorry you didn't have longer with your mum. At the moment you are probably numb with shock, are busy arranging and sorting out things and it doesn't feel quite real. Keep strong and come here for support. I too need support, it's been 9 months now and I have still trouble coming to terms with it. Message me anytime if you need to cry, rant, be angry, or need any other advice or support. Alison your lovely mum is not suffering now and you wouldn't have wanted her to suffer any longer. Take care, try to look after yourself, let me know how you get on. Sending hugs and Gods blessings x

Hi Zita

I'm sorry to hear about your mum, my heart really goes out to you. I've just come across your post as I lost my dad to this horrible disease in February this year and finding it hard to come to terms with. Even though I knew it was coming it didn't make it any easier. He was only 61 and pretty healthy apart from the meso. I switch between being angry and upset and find every milestone difficult - I recently turned 25 and spent the day after my birthday in tears because I realised my dad would never know me as anything other than 24 and I could do nothing to change that. It's such a cruel disease and has left my mum a widow at only 62 - she's extremely active and young for her age but I worry how she'll cope when I move out- I've lived at home since I graduated from university in 2012 but I'm planning to buy a house with my partner in the next few months and I hate the thought of her being on her own (I'm an only child) so as much as I'm excited I can't stop thinking about her being on her own in the house she shared with my dad. I feel like I've had to grow up a lot over the past two years (dad was diagnosed in May 2013) and that I can't be like a normal 25 year old because I'm grieving, I think I have been since dad was diagnosed, and I feel really responsible for making sure mum is alright and isn't on her own for too long. 

Sorry I know this has turned into a bit of a ramble.

My heart goes out to everyone who is/has experienced this horrid cancer and I would really appreciate a forum/group to help people who have lived through it and are now dealing with the passing of their loved one. I'd also like to be able to help anyone who has a loved one living with meso - hopefully the tough times I've been through can help someone else!

xxx

I think your blog is a great idea.  My dad was diagnosed a year ago and now the end is near. I would have liked to have had more knowledge of what was happening to him and what to expect and to be ale to share my feelings and experience.  I have gone through anger and despair, sadness, grief and hope.  Now, and it feels like it's only this past week that this has been true, I have accepted.  My dad is dying and probably very soon.  Feel a bit numb, sort of calm, sort of scared, not knowing how to be, how to act.  If I'd only known a year ago that my family wasn't alone....

Where can I find details of your blog - and thank you for doing this, if it helps a handful of people going through this vicious disease then you will have done a wonderful thing.

Hello Diva

Just wanted to say how sorry I am for your loss but I understand what you mean about him looking his old self.  My dad is   in the latter stages now and bears little resemblance to the man I have always known and looked up to.  I am torn, as I am sure you  must have been, between wanting the suffering over, and wanting to hang on to him as long as possible.

Sincere condolences

Lynne xxx

Dear Zeta

I think your blog would comfort so many people.  My dad is in the latter stages and I have gone through so many emotions already.  To know that they are normal and to even read about people going through the same thing helps me enormously and I would welcome your blog and love to help in any way.  At the moment my area of interest, does that sound wrong, is about grieving before your loved one dies and the guilt surrounding that.  

Any help I can give is yours

Lynne x