Hi All,
I don't know what I want out of this really, but feel I need to write down some of my thoughts /share my experience with people who understand.
I lost my dad on January 6th to this cruel disease and it's only just starting to feel real now.
He fought so bravely for 9 years. I know he was very lucky to survive so long, when he first received the diagnosis, it was assumed he had months, maybe a year to live.
He had various treatments along the way, chemo, radiotherapy, in 2019 he had extended pleurectomy decortication and lastly in 2024 he had immunotherapy.
He responded well to everything except immunotherapy. He was having this every 2 weeks and it really knocked him each time. Just as he was starting to recover it was time for the next dose. I really wish he hadn't had the immunotherapy and just lived his last 6 months or so treatment free. I know people respond to it differently and I guess if he didn't have the immuno, we always would have wondered if it could have saved him.
I can't stop thinking about his end in hospital,.replaying everything over and over. I just miss him so much and hate this awful disease.
I am so very sorry for the loss of your dear dad. Your feelings I absolutely understand having also just lost my 73 yea told father of this as you say awful disease. All your emotions resonate a great deal I was the opposite I wanted my father to try other things privately that weren’t available on the nhs. My father only lived for 10 Months since his diagnosis. Your dad did tremendously working through the treatments. Sadly nothing worked for my dad immunotherapy didn’t do anything on fact it progressed from chest to abdomen and from there he tried 2 cycles of chemo which made him feel terribly ill and he requested a scan before another cycle which showed further progression particularly in his abdomen despite some stable slight changes in his chest. My dad died in a hospice following a build up of excruitiating pain which was got on top off with increased morphine dose but acute kidney failure set in. I am starting grief counselling next month have you considered this? I hope you are ok and you have a lot of support at this difficult time. There is no expiry with these sessions so it may be worth looking into they have group as well as one to one. Hugs x
Really sorry to hear about your dad. 5 months on for me and still feels very fresh, so I can really feel your pain right now. Sorry for all your dad went through and that you only got 10 months since diagnosis. It's just awful, nothing else you can really say about it.
I haven't really thought about grief counselling, but perhaps I should. Is there a particular company providing the sessions? I hope they help you x
Hi me, I’ve just popped over from the lung cancer forum ( my disease) as a friend has just been diagnosed with mesothelioma and I wanted to learn more to try to support her.
You ask if there is a company providing grief counselling and I can wholeheartedly recommend Cruse Bereavement.
When I lost my mum to bile duct cancer I was unable to function a year later and they arranged for a lovely lady to visit me at home. She came every week for a year and was absolutely wonderful. It is free of charge and I can’t recommend them highly enough.
I hope you reach out to them, they really are the cream of the crop of bereavement services and I wish you so much luck in working through the agony you feel. It takes a long time but is a measure of your love for your brave Dad
Thanks for your message. I have heard of cruse, but it was a long time ago and I had completely forgotten. They sound amazing and I'm glad they provided you with good support..I will certainly reach out to them.
I'm so sorry for what both you and your friend are going through. I hope you are doing okay. If you ever want to talk, I am here
Thank you so much! I have been no evidence of disease with the lung cancer for nearly 7 years so am very grateful. It may still recur but will cross that bridge when it comes to it!
My friend is on a watch and wait for her mesothelioma which I don’t quite understand but I will definitely be back to ask more questions. I am 66 but very close to her daughter and want to be able to support her all I can too, my knowledge of this disease is limited.
Lots of luck with Cruse, they will see you after 3 months from bereavement which you are over and I really hope you can get an appointment to share your grief with a kind person like I had x
That's amazing, let's hope that continues for you!
If you have any questions about mesothelioma, I may be able to help out with that.
My dad was on a watch and wait for a while. In his case, it was that following his operation,.there was no/little visible cancer, so nothing to treat at that time, but in the knowledge it would come back at some point, so needing to be scanned regularly to see what the situation was.
We found hasag to be an incredibly helpful charity, so it may be worth getting in touch with them.
Hi i havw had 1 session so far your hospitals hospice division will have a support service i found it helped so far just talking things through. I hope you are okay its not easy to accept losing a dad. x
I am so sorry for your loss My husband died with this awful disease he was a fit 72 year old man took 8 months from start to finish I’m still very angry about this he worked for Thames water as a carpenter started at 16 took all those years for it to come through I still feel they murdered him and the government I’m a very angry woman who has lost her whole life
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