My husband was diagnosed with mesothelioma in July 2018. He has since had a biopsy in September, the surgeon phoned us to say it was well differentiated mesothelioma with a life expectancy of 20 years we were overjoyed. But we were then told by our oncologist that was wrong it was bog standard Meso. We had an open and shut case for compensation because my husband had worked in power stations and was a registered asbestos worker all his working life. We clashed with our oncologist when he just dismissed us as looking for silver linings when we suggested the pleurectomy/decorticating operation so we sought help in the private sector. He had the operation privately in January 2019 followed by radiotherapy and 4 cycles of adjuvant cisplatin + premetrexed chemotherapy. He put on weight and his recovery although difficult was amazing. Life for us was wonderful lots of holidays and just enjoying his recovery. May 2020 he had a relapse and the Professor that had been treating us was stuck in Canada due to covid. He recommended a new oncologist to us and my husband started immunotherapy in June which was wonderful to start with but then he unfortunately had a reaction which necessitated stopping the treatment. November 2020 Pet scan confirmed disease progression. He now is back on chemo but has lost weight and is hardly eating. It is so difficult going through this during the pandemic and very hard for our children and grandchildren we so long to be properly back together again so we can have lots of hugs. My husband is so positive and determined to get better but I am struggling watching him going through the chemo. We have had great help from our Macmillan nurse and the local hospice team I can’t thank them enough but most days when my husband is in bed tears are not far away. I am finding it harder each day to put on my optimistic face for him. We have been happily married for 41 years we love each so much and are best friends. Well folks that’s are journey so far. I wish everyone going through this all the very best
Hi Enjoytoday and welcome to the online community
Can I start my saying that I think your username perfectly sums up how we should all live our lives as we never know what's around the corner. It sounds like you and your husband have been trying to do just that over the years since his diagnosis.
I'm sorry to read how much harder you're finding everything at the moment and I hope you don't mind me suggesting that you join the carers only group which, as it's name suggests, is just for carers so is a safe and supportive place to discuss your worries.
If you'd like to do this clicking on the link I've created will take you straight there where you can join and post just like you did here. If you wanted to post there exactly what you've posted here then just copy and paste it to save you typing it all out again.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
I'm very sorry to read this news Enjoytoday. However, I'm pleased that you were able to grant him his final wish.
Sending a virtual ((hug))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Thanks for being so thoughtful and asking after me Enjoytoday. I'll be having an excision biopsy on a mole on my back in a few weeks time as my consultant thinks it's changed. Hopefully it'll prove to be a false alarm.
Take care
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
