My husband has epithelioid mesothelioma. He had 6 sessions of immunotherapy but has moved on to chemotherapy as the latest scan showed growth in multiple area of his lung.
He has had a nasty cough for the last week, which he can’t shift. I know coughing can be a sign that the disease is progressing but this seems more like a chest infection as he has other cold-type symptoms. His temperature has been low - around 34 degrees all week.
We are going to A&E as advised by his day unit, but really wanted advice regarding anything to help with the coughing. He has hardly slept all week.
Can anyone offer any help- perhaps things you’ve tried to help him be more comfortable and/or to reduce the coughing? It is so debilitating.
Many thanks, and good luck and best wishes to one and all.
Hi JMK
Sorry to hear about your husband and hope the visit to A&E gives you some help.
One thing I found some time ago with a chest infection was that I coughed much more lying down than when I was sat up so ended up sleeping propped up in a corner of the room on pillows.
<<hugs>>
Steve
Thanks Steve. My husband was given IV antibiotics at A&E. He had bloods taken for sepsis check and infection markers and also had an X-ray. We were really reassured by the speed and efficiency of the response. We’re relieved it’s a chest infection and not a sign of disease progression. The tip for sleeping in a more upright position is helpful so thanks for taking the time to respond.
Best wishes
I hope your husband cough has improved sorry to read about the set backs with the immunotherapy. My dad, 73 has the same epiltheiod pleural mesothelioma and has also had 5 immunotherapy sessions to date he feels unwell in troughs lately he has more episodes feeling ill he describes inner shaking in his body, tenderness in stomach, terrible constipation, and heavy in his legs some blurry vision.
Did your husband have any outward signs of illness that growth had occurred before the scan revealed changes. How has he felt on the immunotherapy. It’s so devastating isn’t it you don’t know if it’s the immunotherapy or the cancer. My dad has had a first scan and gets results first week December. Terrified it feels like a black tunnel we are all stuck in.
thanks for reading hugs Liz x
Hi Liz, sorry to hear about your Dad. We sadly didn’t have any indication that the immunotherapy had stopped working- and so it came as quite a shock when we were told. Thankfully Steve (66) didn’t have any adverse reactions to the immunotherapy. The previous scan had shown a reduction, and he was feeling quite well physically. He was playing golf twice a week and we’d just had an amazing holiday in the USA. I suppose we’d lulled ourselves into a false sense of security….
Steve’s now had 2 rounds of chemo and has felt pretty rough for about a week after each session, but then picks up. His cough is much better. He describes pains in his stomach and chest but of course we don’t know if this is due to the chemo or the cancer progressing.
Our biggest struggle is with Steve’s mental health. Understandably he finds it really hard to stay positive…..we’re just taking each day as it comes.
I hope your Dad’s scan results are positive and wish you both all the best in this nightmare journey.
Take care, Julia x
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