My mum was diagnosed with Meso in December. It was in one of her lymph nodes. She had some immunotherapy but it gave her colitis so stopped it. She’s had a scan and the disease has progressed. They’ve offered her chemo to slow it down wit’s no guarantees but mum isn’t sure. if it’s just gonna make the time she gains more painful and in hospital ?! She wants to talk it through at the weekend and ask advice. I don’t know what to say or how to help.
Hi Deesa1411 and welcome to this corner of the Community but sorry to see you finding us.
I don't have Mesothelioma but have lived with Asbestosis for a number of years, fortunately it remains stable but my main 23 year fight is with an incurable type of blood cancer Stage 4a
It would be good to talk with others about the journey so let’s look for the group members to pick up on your post. There are a number of active group members at the moment so why not click on the main ‘Mesothelioma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
Talking to people face to face can help a lot but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.
You may also want to check out www.mesothelioma.uk.com for some good information and have various support platforms.
As for the practical and emotional challenges of supporting your mum and indeed yourself you may benefit from joining and posting in our general……
and our
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
