Metastatic melanoma

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Hi there 

I'm new to all this my name is kazzie im 54 and was diagnosed with metastatic melanoma,

Id found a lump in my armpit ultrasound scan showed up 4 lumps lymph nodes swollen 4 biopsies taken. Waited a awful 3 wks but came back clear...on returning for the results I felt that the lump had got bigger so when told it was clear explained that I felt had got bigger and was painful having pain in my muscle down to my wrist,

I then had another ultrasound and mammogram ( even though it had only been 4 months since last mammogram)

Ultrasound showed lump had got bigger and instead of 4 lumps now I have 6... more biopsies taken. Then I was called back withjn the wk to tell me it was cancer.  They said that there must be a hoist somewhere for it to then go to my lymph nodes so ct scans of head throat and to pelvis was taken but came back nothing could be found..  

I had the operation all lymph nodes removed from my armpit discharged after two days with one drain attached  and told to come back in 6 wks itss now been 4 wks ive been to my local gp to find out I had infection so antibiotics was given but no other contact I was given a nurse to call if any questions but she never gets back to you just felt so alone scared that something has been missed, any slight pain think I still have it not sleeping well as anxiety wakes me up has anyone else had this done and how was there experience?

  • Hi  

    I can appreciate how stressful this all is. The waiting is awful. 

    Like you I had a complete lymph node dissection from my armpit. I originally had a small melanoma removed from my arm in 2016. I wasn't offered a SLNB (sentinel lymph node biopsy) In 2024 I found a lump in my right armpit. The GP initially dismissed it as a cyst. Eventually I was diagnosed as stage 3b melanoma. About 10 weeks after the surgery I was put on adjuvant targeted therapy drugs, Dabrafenib and Trametinib. I completed a year of this treatment. I had a few side effects but I am recovered now and being monitored with scans and skin checks. 

    I would take comfort that your CT scan showed no further spread. I imagine you'll hear from a cancer specialist soon regarding the next steps. I guess it'll be immunotherapy or if like me, you have the Braf gene then Dabrafenib and Trametinib. 

    I can relate to the sleepless nights and anxiety. I wasn't given a cancer nurse so had no point of contact (sounds similar to you!) 

    I hope you are recovering from the infection. If you have any questions, please feel free to ask. 

    Best wishes 

    Elaine (53)