Recently diagnosed with PT2A superficial spreading melonoma on 31st March. It’s by the hairline by my ear. Frustrated as I went to the doctors last year and I was told it was fine. I’ve been told my prognosis is good but I’m really worried about the SLNB and wide existion booked in for this Thursday. The melonoma was 1.6 mm, clear margins and not ulcerated. I’ve also got a Spect scan on Wednesday in preparation for Thursday’s op.
Hi KevJohn and a very warm welcome to our corner of the online community.
I was diagnosed with pT2a amelanotic melanoma and had both the wide local excision (WLE) and SLNB that you'll be having in a couple of days time. What aspect of the SLNB and WLE are you really worried about and perhaps I can put your mind at rest?
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Thank you for replying. I think I’m just over thinking everything at the moment. I’m struggling with the fact that it could have been caught last year and although I keep being told the prognosis is good I keep thinking worse case scenario probably because I keep googling things. I’m also worried about the recovery time.
Hi Kevjohn,
I was also anxious about my SLNB as it was going to be by my ear as the WLE was on my forehead. I had the procedure Friday and all wen to plan I’m feeling fine just bruised and swollen which is to be expected.
what I’ve learnt over the last few months is not to google but to get support on here and friends an family.
And just get through each procedure at a time, really appreciate the days you’re not going into hospital and don’t think too far ahead. As this often would send me into a panic.
All the best with your procedure
sending positive vibes
My WLE was on my upper arm and my SLNB from my armpit, so not in the same area as you. I had a little bit of pain for the first couple of days then the sites were sore rather than painful for a few more days. By the time I went for my results, 2 weeks later, both wound sites had healed and I'd got full movement back in my arm.
It's natural to worry that things might not be as good as you're being told but my staging was the same as yours and here I am 10 years later with no further treatment needed after the WLE.
I'll be keeping my fingers crossed for you.
Wider existion completed today and SLNB. Original plan was a skin graft but there was enough skin not to have to do it which was a nice surprise when I came around. No real pain at the moment and staff have been brilliant. Thank you for everyone’s support as my mind has been all over the place since my diagnosis and reading everyone’s stories has really helped. So lucky to be part of such a supportive community.
Hey KevJohn
Great to hear your surgery went well and you didn't need the graft in the end.
My melanoma was also 1.6mm and on my calf so I had the same treatment as you but in a much less high profile area. I also faced resistance getting diagnosed with it taking four months from my initial GP visit to getting it confirmed, and honestly I still sometimes get angry about the treatment I received almost 8 years later! You can read about it in my bio if you're ever stuck for a bedtime story.
Wishing you a very speedy recovery. x
Thank you so much for the response. I’m home now and not really in any pain and I’ve been told to uncover it in 48 hours to get air on it. I’m still angry that I didn’t challenge the doctor more last year but we put our trust in them. A little worried about the results but I know treatments are so much better now. Seeing stories like yours get me through those days where I feel low and just think this thing is going to kill me.
So been to the hospital today and the biopsy results are back. No cancer on the lymph node nor in the wider existion. Really weird feeling right now as I’m so relieved but also still wondering how I got myself here. I’ve been told today that my melonoma was PT2A but classed as a 1B, also a bit confusing but apparently it means low risk of coming back. I’m going to stay in the group as everyone’s support has been amazing.
Amazing news KevJohn !
I understand that feeling of "how did I get here"? It took four months to diagnose my melanoma because of resistance from a medical professional and my acceptance of what they were saying so if I notice something now that doesn't seem right, I just go and get it checked without hesitation and I challenge any resistance. I had a new lesion looked at at the end of 2024 and pushed for the urgent referral despite them not wanting to do it and I got it. It did turn out to be benign, but I'm still glad I made a fuss.
Stage 1b has a high cure rate so chances are you've seen the back of it for good. All the very best to you!
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