Hi I'm new to the group.
I've had 7 immunotherapy treatments with nivoilumab& relatlimab combined.
After having vision problems I went to opticians who referred me to the eye hospital.
The consultant told me I have fluid in the macular area caused by nivoilumab.
He has sent a letter to my cancer consultant asking for this drug to be stopped.Has anyone had this situation and what did they do?
Hi Shinesand a very warm welcome to our corner of the online community.
I don't have the experience you're looking for but I noticed that you'd post hadn't had any replies yet. Responding to you will bump it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Thanks so much for your message . X
Its nice to know someone cares and takes the time to get in touch . Ive been in and changed my profile with a bit more info .
It makes me feel anxious just going onto the forum but Ill get there .Wishing you well .X
Hi Shines
i had a similar experience. After my second round of Immunotherapy on the same drugs as you I developed a sore red eye thought to be conjunctivitis. After seeing a consultant in our local eye hospital it was diagnosed as Uveitis and my treatment was stopped. I was treated with steroids and after 6 months got the all clear. Although the eye consultant thought it save to resume treatment my oncologist deemed it not save to put me at further risk of more damage to my eye or in fact the other eye with serious consequences.
Although worried and feeling very much at risk of my melanoma returning which was removed from my calf and lymph nodes in my groin I had no more treatment and am still here after 9 years !!. I have regular skin checks and scans every 6 months. Hope this helps give you some reassurance.
Thanks for your reply.
Im glad you are still fit and well.
My first melanoma was on my right calf 11 yrs ago and that was removed and no further treatment .
This Melanoma is in my left lung and I dont know until 2 weeks time when I get my scan results whether the 7 rounds of drugs have had any effect on the current Melanoma.
I guess Ill just have to wait and see what my oncologist says when I see him .
Wish me luck .
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