Where do I go from here?

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Hi- new to group and just been diagnosed with stage 3 melanoma. Had a wide excision on leg and satellite cells found at wound site and in two lymph nodes. Awaiting a ct to see if cancer has spread. 6 yrs ago I had a melanoma same leg a wide excision but no spread and have been well til this one surfaced.  Just concerned about next stage and immunotherapy drugs, side effects etc- a lot to take in at the moment whilst still recovering from surgery( leg looks like a blast site). Grateful for support of McMillan nurses who are amazing but worried all the same about my quality of life from here on in. I’m in my late 60’s , generally fit and well and active. I love to travel and I fear this will out paid to all of this. Any suggestions would be helpful whilst I navigate this horrible time..

  • Hello. Sorry to hear your news. There’s no disputing it is going to be a stressful time for you. I was diagnosed with stage 3b melanoma about a year ago - on my foot. Fortunately it has not spread further than my lymph nodes. I’m coming to the end of 12 months of immunotherapy. All of this has been a massive shock as I have been in good health for 59 years then suddenly 12 months of constant hospital appointments, all at a time when I was due to retire and had plans for travel. The immunotherapy hasn’t been too bad - I’ve felt well, albeit with some side effects. And I’ve still been able to travel - Edinburgh, Paris, New Zealand, Cape Town and Italy - with reasonably priced holiday insurance and no problems. So it doesn’t have to be the end of your travelling and you will hopefully not have too many side effects. Best of luck with your treatment - if I can get through this, anyone can!

  • Thank you very much for replying- youve given me hope that the future isn’t as bleak as first thought. I hope you are enjoying your retirement now. 

  • Hi,

    I'd reiterate what Cerys30 has said - I put my overseas travels on hold whilst I was undergoing treatment, as advised by my oncology team, however after two years of treatment I'm now in remission and enjoying my visits abroad (I'm writing this in Bruges!).

    One side effect of my treatment is that I now have Addison's Disease which means I avoid travel to countries which may result in a dodgy tummy, but that's a personal choice rather than medical instructions.

    Good luck in your treatment going forwards and let's hope your side effects are as tolerable as mine were.

    All the best.