Hi I have Stage 4 melanoma in my small intestine. It cannot be surgically removed so am having the same immunotherapy with Ipilimumab and Nivolumab. So far I have done the first 4 sessions with no major side effects just a change to my thyroid but that is being managed with tablets. Like you I don’t know specifics other than stage 4 as it has spread from a previous bad mole 8yeara ago. I’m due to switch to a one drug dose I forget which one, at the end of the month, but so far so good. Am currently waiting on progress test done this week. 

Wishing you all the best

Hi there, my early diagnosis was Stage 3c, back in Sep 2023. Because it had spread from my scalp to a lymph node in my neck with another suspicious lymph node nearby, I was first advised by the Dermologist that surgery was not an option but the MDT (multi- disciplinary team) had agreed that I was a suitable candidate for immunotherapy treatment. I opted for the combination drugs of Nivolumab and Relatlimab - at the time this was a new combination only recently approved by NICE. The doctors and skin cancer specialist nurses have all been fantastic and have always provided all information requested. On Wed this week I had my 23rd treatment and received the results of my latest CT scan showing that the there is no metastasis to any organs and the suspicious lymph nodes were reducing in size or stable. Apart from one serious side effect in Aug 2024 when I was hospitalised due to adrenal insuffciency, my body has tolerated the treatment very well. I am on the lowest dosage of steroids to compensate for my adrenal glands not functioning normally. I have three more treatments remaining after which I’ve been told I will have a PET/CT scan to determine in more detail if there has been any metastasis to soft tissues as well as organs. I keep fairly fit with exercises in a hydrotherapy pool twice a week, play walking football weekly, and do some gardening when weather allows. I’m keeping positive and make the most of every day. Planning some foreign trips when treatment is finished in May. I found out about asking the right questions of the medical team from some excellent booklets produced by MacMillan, and these are all available online from their website. Ask away and get as much info as you can and stay positive. Wishing you all the best in your partner’s future treatment.,