Hi! I’m new here and very anxious, I am stage 3 melanoma

Hi Basil! Thank you for sharing your journey with me. I’m sorry to hear that you have had a negative experience, how on earth have you been misdiagnosed since 2022? That was my question to my cancurse, from my first diagnosis, “ so you diagnose me in December, it is now the end of January and I haven’t received any treatment to get rid of this cancer, or been referred to an oncologist, so is it doing now”? She said I can’t answer that! Anyway Basil! I had Lymph node surgery on the 13th February, the results were, 20 removed and only 2 contained the cancer, I have just had an MRI b scan and a CT body scan, awaiting the results. I had my first appointment with the oncologist yesterday, who discussed Immunotherapy, once the scan results are received, so things progressed rapiafter my post and concerns. Keep me updated please. And positive healing to you  Squinky aka Tracy x

Thank you for your quick response. I went to my GP who used the dermascope and measured the black growth on my abdomen and he declared it was a seborrheic keratosis. No let’s look at in I’m a month or come back if you are still concerned. I was so worried so I returned the next year for a second opinion. This time another GP after reading his diagnosis confirmed the original diagnosis saying it will just dry up and drop off. 

still no suggestions to keep an eye on it and no using the dermascope or any tools. No suggestions of a second: third opinion. I felt like a hypochondriac as they were dismissive of my concerns so again thought they must be sure to not advise me to do anything further. Late 2024 I was so worried and could physically feel the melanoma changing and causing sensation so I made a third appointment this time with the first GP who agreed to permit me a specialist look at it. They confirmed immediately by photo that it was most likely Malignant Melanoma. That was in October so I am still awaiting treatment. I’ve had it confirmed that it is in my nodes but nothing about further metastasis. 

Everytime I receive an appointment it’s to apologise that no one has returned my calls or contacted me. My cancer nurse phoned me this morning not aware that I’ve had no information from the CT scan but to inform me that there are undetermined brain scan results that now require an MRI scan. 

I too like you are aware that the cells are since 2022 running rampant in my body while I await treatment. It’s terrifying. 

Your health authority sounds more proactive than mine if you have had both CT scan & MRI

Good luck for whatever treatment comes next. Let’s hope there is therapy that works for us

Hopefully the undetermined results are nothing too sinister  and that the cancer has managed to contain in your lymph nodes, as did mine. Keep me updated. Best wishes Basil x

Hope you’ve stuck with the hospital