I was diagnosed on the 9th December, with Melanoma cancer, stage 2, after a mole was removed from my back on the 19th November,my original appointment was on the 14th October, but it was cancelled!. I was then referred for a scan on my lymph nodes that were nearest to the cancer, being in my armpit, I also had a biopsy, as the lymph nodes were showing up enlarged. I was given the confirmation on the 23rd December, that the cancer had spread to my lymph nodes and that I was now stage 3, I was then referred for an MRI brain scan on the 26th December and a full body CT scan on the 2nd January, to confirm whether the cancer had spread to anywhere else. I was anxious waiting for the results, because my thoughts were, if my cancer can spread in such a short time, what is it doing now and nothing is being done to stop it. So I rang my cancer nurse on the 9th January, she said she had the results back and that the scans showed no sign that the cancer had spread anywhere else and that it remains in my lymph nodes, in my armpit, and that she will liaise with specialists to discuss what treatment is best for me and that she would speak to me next week. In the meantime I was sent a referral appointment to a hospital in East Grinstead, a plastic surgeon, for the 23rd January So my anxious thoughts and questions are- should I be seeing a consultant that is a cancer specialist? And how soon will I be receiving treatment? Why am I not receiving some kind of treatment by now? Please help
When is had my original mole removed back in 2016, I had to also visit a plastic surgeon at east Grinstead who removed a 2.5cm excision from around the tumour location for biopsy and to lower the risk of any cells leaking from tumour...I treated it as a mini face lift! ..the guy was excellent and it's all very straight forward.
Your results I'm sure would be discussed at the next cancer discussion board which I believe are held weekly which maybe this week but someone should be telling you this.
The cancer nurse said she will speak to me this week. I popped into my doctors surgery, as my doctor left just before Christmas, and I had a text message to say that I have been assigned a different one, because I wanted to ask why have I not yet been referred to a consultant that specialises in cancer, and I have had a little bit of pain over the weekend in my armpit where the lump is in my lymph nodes. The receptionist said she would get the doctor to call tomorrow, as today has full capacity. And that I have been referred to an oncologist but the nhs is a waiting game I hope you are well now
Hi Squinky,
so sorry to hear about your diagnosis. It is scary and sometimes you just want somebody to talk to.
I am due to have an operation to remove all my lymph nodes in my groin due to recurrent melanoma.
I was diagnosed in November and my operation is scheduled for the 13 th Feb. The waiting is hard and you just want it done quickly. I have found the Macmillan team have been really helpful with elleviating my fears and giving me practical things to do and signposting to other relevant services.
I did contact my dermatologist to let them know I hadn’t heard anything about an appointment to see the surgeon and they got it sorted for me.
hopefully you will get the support you need xx
Hi squinky,
My first time I was stage 3 and had a wide excision on my leg to remove additional flesh from around the mole as well as a sentinel lymph node biopsy which indicated a trace in my lymph node so they also removed a few lymph nodes in my groin. I recovered well and have been receiving regular CT scans for the past 4 yrs now until Nov when I found a lump in my groin which is recurrent melanoma, I now am waiting for an operation to remove all my remaining lymph nodes in my groin.
It is a journey and everyone’s is different so it’s great to know like you said that there are other people going through similar things to chat to.
People don’t always know what to say when you mention the big C word do they .
I hope it goes well with the surgeon and you get a date for surgery xx
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