2nd time around.

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Had a malignant melanoma removed over 25 years ago

Now I'm back with a 2a melanoma. 

Due for a WLE and a SLNB with 3 further moles to be removed

  • Oh I say, that's tough luck, I'm so sorry and wish you Very well... x.Green heart

    I'm only facing my first one, but it's a social nusiance as on my scalp.  Small head, so having difficulty finding a hat to fit - they either balance like a pea, or I peer out like Parrrot-face Davies!

  • Hi, sorry to hear you've got a 2nd melanoma diagnosis after such a long time. You must be shocked if it's been 25 years!  I guess maybe it just feels like a brand new diagnosis right now as with no recurrence from the first one you probably felt cured.  This melanoma could be totally unrelated to the first one and could even be a different type of melanoma. 

    The positive thing is that the treatment has changed so much, immunotherapy has given so many of us a really good fighting chance with this crap disease.  You'll find on here many stories from people who are doing really well so don't be too downhearted.

    I hope you have good support from friends and family to get you through this and of course you have us.

    Did you have a WLE and SLNB 25years ago and know what they entail?  You hopefully have been introduced to a skin specialist nurse or melanoma specialist nurse and they can be a really good person to contact and hear back from fairly quickly with any issues or questions you may have. 

    Please take care and don't Google too much to scare yourself or read false info hon.  Take care x

    • Thanks for the welcome.
    • Well there are a ton of hats out there I'm sure you'll find something that suits you. I used to love trying them on in department stores. If not a hat maybe a headscarf/bandana. 
  • Hi

    Things have changed so much, there wasn't the information and support around the that there is now.

    I was in my 30s with a 2 year old first time around. I just had to get on with it. 

    I did have a WLE that they wanted to put a skin graft on. I was scared as anything, I'm not squeamish but stitches make me feel ill.

    The graft would have come from my bottom and as the WLE was on my arm I joked I'd be able to scratch my bottom in public. Luckily they covered it and left me with a dent in my arm.

    I went lower this time, with one on my leg. Really not looking forward to the SLNB and actually having to have a graft this time.

    Thank you

  • Och well...  I was only diagnosed last week, and though not without friends I live alone, so talking even online helps a bit with the shock, getting used to the idea.  (And I found a couple of chldren's hats today anyway Joy) Best wishes.