Just diagnosed with 1b Melanoma

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Feeling rather nervous with all the paperwork and phone calls .. have my first appointment with consultant soon to discuss wide local excision and consideration of lymph node testing … obviously worried if I go for the lymph node test that they find something … my mole was on my arm so will be testing armpit nodes has anyone had this experience that could share please Pray tone1 

  • Hi  and a very warm welcome to our corner of the online community which I hope you'll find is both an informative and supportive place to be.

    When I was diagnosed with melanoma I was given the option of having a sentinel lymph node biopsy (SLNB). I decided to go for it as I didn't want to find years down the line that, if the melanoma came back, I could have started treatment sooner if I'd had a SLNB.
    My melanoma was also on my arm so the SLNB in my armpit was removed. The WLE and SLNB happened over two days. On the first day I had a lymphoscintigraphy which identified the location of the sentinel lymph node in my armpit. The second day was the WLE and SLNB. Having never had any surgery before, let alone a general anaesthetic, I was nervous but everyone was very good, explaining what was happening and it wasn't nearly as bad as I'd imagined.
    I hope this helps.

    Anne

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thank you , I think it makes sense to have the SLNB … although nervous of the outcome of course … I hope your well

  • It's natural to be worried about a possible positive SLNB, but I felt I'd rather know early than find out years later and, maybe, too late for treatment.

    It's 10 years since my diagnosis and I'm well thanks Relaxed

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi, I have stage 2 melanoma on my forehead, diagnosed after the first excision. I opted to have lymph node biopsy because I couldnt live with not knowing. I've had my wider excision and lymph node biopsy this week. The trace went to  one lymph which was removed. I have great faith in the plastic surgeons and I'm ready to move forward with whatever is recommended next. Best wishes for your consultation 

  • Hi 

    I had mole on chin 2.3 and diagnosed melanoma in April but said removed all with clear margins but wanted to perform wider excision and SN removal the trace only showed 1 node so like others that’s an option I chose to go with it quite a large scar and flap on chin and scar from chin to ear for lymph node  Surgeon was amazing scars healed brilliantly and being a women they provided me with camouflage lesson in make up to cover and it’s incredible 

    Took 5 weeks for results to come back all clear I am glad I had both procedures done makes me a little more settled it’s a crafty cancer though so have fingers crossed but will receive check ups for 5 years and they said any worries contact them straight away I have been so impressed with hospital in my area they have been quite amazing also I have had no pain at all with the procedure 

    I have my fingers and toes crossed for you Good Luck 

    CMK

  • Thank you so much .. stay well , I think it seems crazy not to have lymph nodes checked .. I have my first appointment this week so will see what they say Slight smile

  • Thank you so much for your reply … sounds like you had an amazing team looking after you .. my lymph nodes would be under my armpit … so not to worried about scaring there . 
    Let’s see how I go with my initial appointment and then go from there … but that awful C Word really does knock you sick  for sure … stay well :) 

  • Hi, I had a small malignant melanoma removed and am now awaiting notification of further treatment in form of WLE and SLNB.  I had a 0.8 thickness but 2 mitoses(?) which means it is actively dividing.  It was on my shin/ankle so very little skin there so will need skin graft and won't be able to walk for a while in case I damage the graft, also lymph nodes will be behind my knee and in my groin. I live alone with my dog so will have to work something out.   Was only diagnosed 3 days ago so still in a bit of a flat spin.

  • Oh sorry to hear that … just back from my consultation and have agreed to go for the lymph node biopsy, to put my mind at rest .   I play a lot of Padel so not looking forward to not being able to do that for a while after .

    i hope you find some help to see you through your recovery… reach out to friends, sure everyone will rally round to help you out 

  • yes, I was gently 'pushed' towards the Lymph Node biopsy option as I am (generally) in very good health and relatively young so the anaesthetic shouldn't prove a problem.  I hate being a burden but I'm sure friends will help out.  Best wishes