New to this - pembrolizumab

Hi I am on pembro too every 6 weeks x I am due dose 6 of 9 next Monday. Side effect wise apart from tiredness I havnt had many side effects xx wishing you well x 

Thank you you for replying. Wishing you well too xx

Hi das353

I'm having single dose(200mg) Pembro every three weeks instead of double dose every six weeks and I've had my 9th dose. Apart from increased tiredness and constipation I have also had sore and stiff hands especially when I wake up.  It's worse where my fingers join my palms, arthritis can be caused by Pembro so my oncologist says.  Painful joints certainly is a side effect.  Can you check with your nurse specialist?

Take care x

Thank you I will get in touch with the team and see what they say. 

Many thanks  x 

Hi I have just been told I need to have this treatment but really worried about the side effects I still need to work , I was wondering how are you getting on with it? 

Hi 

I completed 9 treatments of 400mg every six weeks at the end of January. It all went very well, apart from some tiredness for most of it I was ok - towards the end as in last 3 treatments I started to develop some rash that still comes and goes from different parts of my body. I mainly use Diprobase to alleviate the symptoms. Wishing you all the very best.

I would love to say it's been a breeze but unfortunately i have been really really unlucky with side effects  I have pneumonitis and just been diagnosed with an underactive thyroid. I had 4 treatments and am not able to continue for the time being  as we need to get my side effects under control. 

But I also know a few people who have had immunotherapy with no side effects at all. 

Personally I think if they have advised it then it's worth doing but that's a decision only you can make. 

Wishing you all the very best.

Thanks folks.  All this is very helpful, as I may have it ahead of me.  Best wishes x

Hi x hope your well. My story is in my bio if you wish to read it. I am due dose 8 of 9 next  week and on the whole I have been absolutely fine. I am a very fit and active 42 year old and apart from being an emotional wreck since diagnosis I have coped fine physically. Sending you best wishes x I go every 6 weeks for a year x so I am hoping the end is in sight for me x 

Thank you so much for sharing that it was so helpful, I hope you continue to get better , it’s all so scary isn’t it!