A very warm welcome to the melanoma group!

I know that you probably never imagined you would need to be part of this group but you have come to the right place to ask questions, share experiences and get support.

You'll find a wide range of experiences with melanoma amongst the members here so please feel free to ask any questions. 

There are people here who have had wide local excisions (WLE) and sentinel lymph node biopsies (SLNB) as well as people on adjuvant therapies suck as targeted therapy and immunotherapy.

If you haven't posted yet and want to ask a question just click on '+New' or '+' (depending on the device you're using), which you'll see near the top of the page, or reply to this post. 

Another way of looking for information is to use the search bar at the top of the page to search for old threads covering what you're looking for.

The online community is here to give support so please join in with posts if you have experience of something mentioned or are in a similar position. Don't feel that just because someone has replied to a post you can't join in. The more shared experiences the better.

Sometimes you might not have any experience with what is being asked about but you might feel that that you know or appreciate what the poster is going through so a kind reply and a gentle, virtual hug is always appreciated.

This post is going to be a 'sticky' so that it will remain on the first page of the discussions list and can be easily found. As you'll have seen I've added a few links to information about melanoma but if there's anything else you'd like adding just let me know.

Completing your profile with something about your journey so far is really helpful. It means you don't have to keep repeating yourself and others know something about your cancer when trying to find people with a similar diagnosis, or before replying. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Bumping post to front page.

    Steph
    Online Community Officer
  • I want to say hello as newly diagnosed with melanoma

  • Hi and welcome to the group although I'm sorry you've had to find us.

    When you feel ready you could start a new post to tell us about your diagnosis and treatment so far. If you have any questions we have lots of people with experience of melanoma who will be willing to share their experiences with you.

    x

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  • I'm glad you've found the information helpful Slight smile

    Community Champion Badge

    What is a Community Champion?

     "Never regret a day in your life, good days give you happiness, bad days give you experience"
  • Hello to everyone I’m a 41 year old married woman with a 11 year old daughter diagnosed yesterday with invasive malignant melanoma and just wanted to say hi. Im struggling to eat and sleep at the moment due to worry, anxiety and nerves any suggestions would be welcome x 

  • Hello , welcome to the group, I hope you have now fallen asleep. When I was first diagnosed (6 years ago now) I was very nauseous and had trouble staying asleep. I think the first thing I came to terms with was that previous anxieties in my life I had left were things that others and I should cope with, where as I suddenly felt released from guilt that I thought anyone with my diagnosis wouldn’t be able to help themselves from being anxious, it was so normal. With that pressure taken off and writing down what my worries were things started to get easier. Night is the worst time for worries I had some counselling or rather cognitive behavioural therapy to help with the worry. The idea was to reduce the time spent worrying by trying to limit the amount of time and moving the time away from bedtime. The NHS site has some ideas on anxiety and if you have a specialist nurse she might have ideas on local sources of help.

    when you say invasive melanoma, I’m not sure exactly what you mean, I’m thinking you might mean it has spread. My melanoma was only diagnosed when it had spread to many lymph nodes, and no primary was found, my experience so far is in my profile (you get there by clicking on my user name or picture). I hope that you are able to complete yours in your own time and perhaps start a conversation about you perhaps in the new to group section. 

    I thought I’d sleep well tonight I had a good day, my husband woke me up though and if I’m awake I need to reset the routine again to get back into sleep mode, so I thought I’d put in a little reply.

    Take care KT

  • Hi KT thank you so much for reaching out! You are right. Anxiety is awful having spent years with it and on medication for it it still catches you unaware! I just can’t stand the nausea in the pit of my tummy! 
    I think you’re right writing it all down will help! Yes that’s my diagnosis and to be honest I went to the appointment with my specialist alone as I only got a text two days prior and my letter only arrived yesterday morning. My first removal/biopsy was the week before half term so I went with the attitude “no news is good news”  and to be honest the rest is a blur! 
    I will get round to writing about my experience I’m still in the feeling like I’m in a nightmare out of body experience.

    thank you for reaching out I really do appreciate it. Hope your journey is a safe and successful one.

    take care x 

  • Hi Chalky1980….just checking in with you as also new to melanoma and this group….I too found my diagnosis shocking and distressing….and my anxiety levels were terrible…but having joined this forum and being supported by people who have experience and understanding and are prepared to share that has made an immense difference to the way I now feel…..just having someone other than a busy consultant explain the terminology, what to expect next and the potential for different treatments based on their own lived experience is so heartening…..I truly hope you find the same comfort as I have and your anxiety becomes more manageable as you do….take care x