Dab and Tram

Hi Simon

I've been on dab and tram for about 4 months now and feeling cold/ getting the shivers is probably the main side effect that I get apart from fatigue.   I normally get really shivery just before my temperature goes up. I have just discovered that a hot drink can sort it out quite quickly,  assuming I can hold the mug without shaking too much!

I hope that helps a bit. 

Jean 

Hi Jean.

Yes it does.

Driving home from work on Tuesday I was just shaking like a leaf and at dinner time yesterday.

You can't stop yourself can you !!

Thank you.

Simon.

Hi I only done 4 months on dab and tram as had 2 toxic side affects and found thyroid cancer which has now been sorted, on levothyroxine and calcium tabs. Still waiting for thyroid function test to stabilise as had all thyroid taken out. If mri head scan is OK will be having sulvalliance scans every 6 months.

Hello all

I've been on this treatment for nearly 2 months and this is what I'm struggling with most. I am unable to control my temperature. Awful chills, shivers and uncontrollable shakes, straight into a temp spikes.  I was in Greece a couple of weeks back and it was the same there! I have like Jean found that a cup of tea helps. The mad fatigue and hyper sensitive skin is also knocking me back, but I'm trying to embrace them!!

I'd just like to add that this forum has been a comfort and a wonderful source of info, many thanks

Karen 

Hi Karen.

Sorry to hear you are struggling with the chills, same here at the moment have to put my coat on in the office but still shake like a leaf, seems to be late afternoon it happens.

I get very tired easily and have no get up and go alot of the time.

I feel nauseas sometimes, even came off it for 3 days at the stsrt because of the nausea, went back on meds and the nausea subsided a lot, but still get it now and again.

I get potty face, and look like a pepperoni pizza sometimes, but a small price to pay :-)

Been on them for approx 7 months and thank my lucky stars that I am getting of lightly.

We came back from Kos on 13th September and before we flew our my arthritis was really playing up, hips and feet, 2nd day in Kos and not a pain anywhere on my body, came home and it's all back again :-(

The people on this forum and lovely and helpful.

Not sure what stage you are, I was told by my SCN that the melanomamates forum on facebook was a good one for people stage 3 and over and I agree it is.

I am stage 3b and I have a good chat on melanomamates on a regular basis, just the chatting part though.

You take care Karen.

Simon x

Thanks for your reply Simon.  I have asked to join Melanomamates on FB. I may bump into you there!

All the best x

Ime sure you will Karen.

Take care x

Hi Jean.

I blame everything on Dab and Tram even the ironing I do every Sunday morning.

But I must admit, I am getting off lightly at the moment, but when I get cold and start to really shake with me being so cold and my wife says it isn't cold then I know then it's not right.

At the moment, I get very tired so easily and could sometimes sleep on a washing line, spotty face, 63 with acne eh, bad cramps now and again and nausea now and again, but it's a small price to pay.

Take care.

Simon.