Pain from lymph removal

Hi TiredTiger 

Although I didn't still have pain from where my lymph node was removed 8 months later, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

Have you spoken to your SCNS about the persistent pain? They may be able to make some recommendations.

While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Hi, thanks for that. Appreciate your input. I'll update my profile. And reach out to my nurse. Thanks again!

TiredTiiger,

I had WLE and lymph nodes removed just shy of three weeks ago.

My main scar is healing really well but the scar from the lymph nodes removal is still swollen and healing at a much slower rate. Perhaps lymph removal just naturally takes more time? I am no expert but I am slightly relieved that your experience is similar to mine also though on currently different timescales.

Elmer Fudd, that's still so new, I wish you well. I see from your profile that you're still waiting on results? 

Take extra care of that wound. I waited 6 weeks and thought I was all 'back to normal' and pushed it too hard. I landed up with an infection as the wound reopened. 

Yes Macmillan nurse said 6 weeks before results, surgeon said 2 weeks......and as of this Friday it will have been three weeks.

My wound is down from the top of my ear, along my jaw line and down to the start of my neck. 

So although I have returned to being active its not an area that I can stretch too far (famous last words), but thanks for the heads up........i will be careful.

1. I had the slnb from the groin too. Mine doesn’t ache, but it does get quite sore. I don’t think it helps that once the stitches dissolved, it decided to pop open. This has led to a raised angry looking scar, which is why I think it gets sore. I’ve had to change my style of knickers as they were rubbing right on the scar and find boy short styles much comfier on it.

I would think that it takes a while to heal because someone is rummaging around a small opening looking for lymph nodes, removing them and then shoving everything back in place. 

Hi. I've just read about your journey and my heart ached for you because I can so relate to your experience and feel the frustration and heaviness. I too have changed to boy shorts. In a small way, it's a comfort to know you're there. Thank you for commenting, I really appreciated this today!