Hi all.
It is going to be another night of no sleep again
A few people have been so helpful to me on this forum, but I am so worried about dying and leave my wife and our 3 boys very soon.
I got my results back from the hospital this afternoon and the doctor from the hospital was so sorry to have to tell me that I have superficial Melanoma.
It was 3.9mm which is big by the sound of it.
I am now waiting for another call / letter from Chrities hospital in Manchester.
He said I will see a plastic surgeon and also have scans done, lymph nodes etc.
I asked him about how long I had left and he did not really want to speculate to much as I had not had not had anything else done as yet.
But it did look like if it has spread I have about 5 years left and if it hasn't spread about 10 years or maybe a bit more left.
Latchbrook has been very helpful on here as well as Miranda and a couple of others.
I can't sleep now just wondering how long I have left with my family.
I am reaching out to see if any other people out there have been in this situation as well as the other helpful people that have been helpful.
Thank you all.
I just feel like my world is coming to an end.
From a very very worried husband and dad.
Thank you.
Simon.
Malignant melanoma is melanoma but most of the time it's just referred to as melanoma as malignant melanoma is a bit of a mouthful.
Superficial melanoma, or superficial spreading melanoma to give it it's full title, is the most common form of melanoma.
By the way, before you panic 'spreading' in the title doesn't mean spreading throughout your body but spreading outwards along the surface of the skin first before going downwards.
There are lots of different types of melanoma, mine was an amelanotic melanoma, but they are all forms of malignant melanoma. If you want to read about the different types click here.
The oncology department are the people who deal with chemotherapy, radiotherapy and immunotherapy. If you click here and scroll down to the sub-title 'Adjuvant treatment' you'll see what is currently offered for people with Stage 2 melanoma. This wasn't available when I was diagnosed so I can't share any experiences of it with you.
Hope all goes well next week. The appointments will be a good chance for you to ask your hospital team any questions you have.
Hi Latchbrook
That is very informative.
So superficial Melanoma is melignant melanoma and amelanotic is also melignant melanoma ?
I hope they are both up there on the curable list for everybody who has any of these and other melanomas.
Thank you Latchbrook.
Simon.
Hi Latchbrook.
I did read that the 5 -year relative survival rate for superficial spreading melanoma diagnosis was 89.7% between 2010 - 2015
As you know I am so so worried about leaving my family soon, they are my world.
Thank you Latchbrook.
Simon.
That's a great statistic, assuming you've got it from a reputable source, as that means almost 9 out of 10 people will survive their melanoma.
Hi Latchbrook.
Not sure, just off the internet again.
Probably rubbish again.
Thank you.
Simon.
Hi Latchbrook.
Just noticed that my plastic surgeon appointment isn't until 9th November 2023.
I thought it said 9th October, seems along time away.
Not sure if that is a good thing or not as it could have spread further in a month, or do the think it's not worth rushing as he has no chance anyway.
Thank you.
Simon.
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