Nivolumb - anyone else experiencing thin hair and eyebrow pigmentation?

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Is anyone on here experiencing thin hair and loss of hair and eyebrow pigmentation.  It’s depressing enough dealing with the treatment but having this as well.

Any tips on what I can use please?

Kos 

  • Hi  

    I wondered when you said that you are experiencing thin hair and eyebrow pigmentation while having nivolumb if you meant nivolumab? There are quite a lot of posts which mention various side effects while taking nivolumab and you could have a look through them by clicking here.

    Although I don't have any direct experience with this drug I can understand how you feel as I lost my hair, eyebrows and eyelashes while having chemotherapy. Fortunately they all grew back once treatment was finished. However, I was advised to use the most gentle shampoo I could whilst I had no hair and also while it was growing back, which I did.

    Anne

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi I have uveitus on front of eye and have developed some depigmentation on back of eyes.  They are monitoring it and will be seen in 3 months.

    I Am  half way nearly, through treatment and stage 4 Braf negative.

    Just get so freaked out with this side effect and hoping someone on here has anything similar.

    Kosy