fatigue on dabrafenib and tramatnib

Hi Emma, I too have been extremely overwhelmed by the options and information. I foolishly thought once I'd had my op that I'd be OK, then it hit me like a sledgehammer and I went through hell.  Tough decision between immunotherapy and d and t. Initially I wanted immunotherapy as it dounded far less disruptive but after an independent discussion with consultant I changed my mind. So far, so good, 6 days in and no side effects. I'm notgetting excited tho, don't think I'll get away with it that lightly. Did you have an option? What stage is your cancer? Xx

Hi, thanks for your reply. I'm day 6 and ok but not getting excited. Will you start vack on same dose or will they lower it? Have you lost any hair ? Has yours spread anywhere else? Xx

Hi Jane, I'm pleased you've had a good start. I had a melanoma on my stomach which had spread to one of the nodes in my groin.  It's a BRAF + disease so they've recommended the targetted therapy.  The stage is 3C. I was told there was only a 5 to 10% chance it would have spread to the lymph nodes so am feeling like a rabbit in the headlights.  There's so much to take in and understand and I'm feeling very anxious.  They aren't recommending immunotherapy at the moment. I hope you continue to do well on it xxx  

Hi Jane,  I've been on treatment now for 8 months. I've experienced slight hair thinning but that's all. My hair is long and was really thick to start with so it's only me that's noticed the difference. I've found side effects are very different for everyone. The worst i've experienced is the shivers and aching joints but only after i've had a break or change in dosage of the meds. I usually have sore wrists but that's worse on a morning. I've got more energy now that I ever had since treatment started, just been hiking up the fells in the Lakes for a week and training for a triathlon again, something I used to do regularly before i was diagnosed :)  Had my second scan on Monday and am just waiting for the results, keeping everything crossed that I'm clear again. I hope everything goes well with your treatment, just take it one day at a time and don't worry about what might happen xx