Hi everyone,
I’ve now been told I have the Braf mutation so they are offering me the targeted therapy just wanted to see if anyone else had experience with theses drugs?
I will be on them for the next 12 months.
thanks
Hi Bees and a very warm welcome to our corner of the online community which I hope you'll find is both an informative and supportive place to be.
I was diagnosed with melanoma 10 years ago but only had surgery to remove it. However, there are lots of people in the group who are on dab/tram. If you click here you can read posts from others who are on this combination and reply to any if you want to ask more questions.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Wishing you all the best with your treatment.
Anne
Hello Bees,
I was on this for a year and finished it in December 2025. I was unfortunately unlucky and experience quite severe side effects the first 3 months with high fevers and muscle soreness. This made them reduce the dosis twice to avoid this, and the reduction made me feel fine and the last 9 months were fine.
Good luck regardless, I’m sure it’s gonna work out fine!
Hi Louiselt,
Thanks for letting me know this. Yes I am wondering about the muscle pains as I do have these anyway due to menopause
can I ask what sort of time of day did you take the tablets? I’m thinking 7am-7pm or 8am-8pm
Im still planning on working all being well in how I feel.
Also how often did they scan you as nurse couldn’t give me that information but the consultant can when I see her at the end of Aug.
many thanks x
The muscle pain went away after they reduced the dosis, so I didn’t have any the remaining 9 months of the treatment.
I took my pills 10am-10pm in an attempt to have some sort of normal dinner time.
I was in hospital once a month for blood tests, an appointment with the team and to be reissued new medication. Then I believe the scans were every 3 months.
Best of luck.
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