Stage 4 melanoma

Hi Jamie/Jamie W3321 

It sounds like you've been through a lot recently and I hope you'll be able to have your planned immunotherapy again soon.

I'm not Stage 4 but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

Wishing you well 

Anne 

Keep positive Jamie! I think quite a few people have had  side effects with immunotherapy that interrupt the treatment and then go back onto it once those side effects are managed.  It can be scary but the specialist nurses can be a great source of information and comfort.   I hope this is the case  for you. 

From my recent treatment, iv seen the Dr and the first dose has worked amazing well despite the side effects but I'm down to 30mg now on my steroids and only expected to be on them for a few more weeks then I can start my second dose things are looking up

Hello. I’m really sorry you’re going through this. You sound like me back in May last year. I have stage 4 melanoma and it was on my liver, peritoneum and lungs. I started enco/binib and had fantastic results. CT shows all clear on my trunk, however MRI shows 6 very small nodules on my brain. So- onto radiotherapy and immunotherapy. I’m not afraid. I knew this was coming.

I’m guessing they’ll probably start you on similar meds just to clear the tumours. Keep me posted. Have faith, be strong. I hope you have a good support network around you - use them! The hospital where I have my treatment has Maggie’s on site which has been there for me in the very darkest moments. There’s a few of these dotted around and of course MacMillan. 
Good luck. 

So iv got my results back, the tumours have shrunk alot, the one on my adrenal gland has gone.

Also I didn't know I had it on my bones also. It was on my pelvis and near my spine but that's been sort of delt with and it's healing as it made my bones weak and fragile.

My oncologist couldn't see anything in my head so I'm gonna get an email from my nurse today or tomorrow about that if they can't get the right info from it then I'm gonna need an MRI scan so all positive.

Also my MRI has been booked in for Monday

Hi Jamie,

You are doing so well! You are young and the fact your tumours have shrunk so quickly is such a positive sign. And great you’re having scans done so quickly. Have you had an MRI before? They are very loud and leave you feeling quite drained. Just go to your happy place, breathe, think about that nice takeaway you’ll treat yourself to. 
How are you feeling in yourself? Are you eating well? Sleeping? Make sure you take vitamin D. 

I start radiotherapy in 2 weeks. 5 days. Then combination immunotherapy- forever. Just hope that forever is a long time! That’s what’s so hard about all this. No magic wands but lots of therapies and treatments.
Let us know how you get on next week. 
Keep well, keep your chin up. 

This will the first time iv ever had an MRI so don't know what to expect . I'm in a very good place currently with eating and drinking I'm sort of back to normal on that stage as back in December and January I wasn't eating at all and dropped 3stone in weight. But the steroids are making me hungry alot. Yer I'm taking vitamin d I was prescribed a high dose for 5 weeks now I'm taking 400ui daily. I really hope your treatment goes well for you and doesn't cause any morcomplications. But I'll keep you updated with my next steps