Hypothyroid from Immunotherapy

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Hello,

my husband is now hypothyroid from immunotherapy treatment. He's had 4 infusions and was diagnosed just before the 4th. He's been feeling exhausted (but still working because he's stubborn and determinedGrin). GP couldn't understand how he was still standing let alone working. He's now on 1 1/2 x 25mcg levothyroxine a day.

He's been feeling really cold and a bit blue at times around the gills. He's resting when he can and it's been good to have some time off over Xmas for this. He usually runs several times a week and plays indoor football.

Other symptoms: restless and itch feet and he got an injury at football last week that kept bleeding for 2 1/2 days before it started to dry up. We'll be mentioning this to the oncologist next week in case of low platelet levels. 

He's had a tendency to insomnia for a couple of decades but it's got worse and he's now only getting 3 - 5 hours broken sleep a night.

I thought with HYPOthyroid he would sleep MORE not less.

Does anyone else have any experience of this/tips/thoughts?

  • Hi  

    I'm sorry to read about the side effects your husband is suffering with after having immunotherapy. Has he notified the hospital team that administers his immunotherapy? 

    I don't have any personal experience but have done a search in the group and saw that  posted about being hypothyroid 6 months ago. Having tagged them into my reply to you, hopefully they'll pop on and share their experiences.

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  • Thanks latchbrook. He's spoken to the GP today but there doesn't seem to be any urgency to following anything up at the moment.

    I wanted him to ring the emergency number last week but he was reluctant as it would have probably meant hours in A&E for very little gain and we were so tired.

    The GP seemed happy he has blood tests again next Monday and a phone appointment with the oncologist the next day.

    Thanks for tagging shelly30. It's good to hear other's experiances.

  • Being on immunotherapy myself I would advise rest alot more to let your immune system work to the level it needs to. I get that working can be a good distraction from the cancer but a balance must be found.