Hi has anyone on here been on Dab/Tram and if so how long, what dose, did you have to stop or reduce dose because of side affects and If so for how long. My partner has been on since 1st Dec has been in A&E 3 times due to high temperatures, infection and chest pains. He is on highest dose 75mg and 2 mg small one. Last contact with oncologist 18 days ago said on telephone call to stop for weekend as bloods low and high temperatures and very low blood pressure and she would look to lower the dose, but still waiting really upset with lack of contact. My partner just started the drugs again after 5 days as fed up with waiting for oncologist to get back to him, oncology pharmacy hadn’t her from her either. He’s due to finish this course Friday night but as feeling poorly again has decided to stop for maybe 24 hrs. He’s been controlling the affects himself no real help from oncology if he does feel poorly and calls emergency number they just say go A&E which isn’t much help having to sit and wait up to 5 hours just to be seen. So just stopping seems to have desired affect. Very stressful time with not much support from oncology not face to face appointments all on phone. Thankfully last PET scan clear apart from a neck lymph node that is slightly inflamed 7ml so very small was same size last scan January. Awaiting results of brain scan, fingers crossed will be fine. Oncology appointments 2 months apart is this normal and about 15 mins on phone so have to write down questions and hopefully get them all in. Maybe it’s the same for all. Oh and only seeing dermatology as we complained, we were told every 3 months but as partner is on adjuvant treatment this isn’t the case, apparently if the melanoma hadn’t spread to lymph nodes then it would have been every 3 months. Strange way of doing things.
