Melanoma spread to lungs - immunotherapy didn’t agree

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I had stage 3C Melanoma have had immmunotherapy only  managed 4/9 treatments as was too brutal as per my oncologist. But now 10 months after last treatment has metastasised to my lungs not sure anywhere else awaiting follow up scan. I’m really scared as all that’s left is targeted therapy has anyone had this as I would be interested to know? It would be nice to hear back from someone who has experienced similar and hope that everyone is well.

    • Hi I was 3B, had 7 of the 9 immunotherapy. 
    • My last scan has identified something on my lung, after PET scan and going through an MBT review, they are still not sure if it is Melanoma or not.I now have an appointment with a Respitory Team at my local hospital and then a follow up with Melanoma Oncology in a few weeks.Terrified!
    • Keep in touch and we can compare onward experiences.
    • Take care and try and stay positive
  • Hi, thanks for the reply I’ve to get another ct scan end of Aug then waiting for results. Then taking it from there as I’m not sure what will be happening. Glad you’ve got an appointment with the Respiratory team then a follow up with your oncologist. It’s all the waiting that does your head in. I hope all goes well and yes definitely stay in touch and we can compare as it’s good to know how other people are dealing with the same type of thing. Best wishes and staying positive 

  • Hi am kind of similar I was stage 3c nodular melanoma now stage 4 inoperable, i had 3 rounds of pembrolizumab  that didn't work and its spread to my pelvis skin groin and lung , im due my second dose of opdualag in the morning  hence why I cant sleep tonight , the pembrolizumab cause hypothyroidism and left me with severe fatigue and a terrible dry mouth, 

  • Hi, good luck for today with your second dose of opdualag I’ve never heard of that is it targeted therapy? The pembrolizumab damaged my pancreas my bowel and also my heart. I also have a very dry mouth still have. I hope ever goes well stay positive 

  • Hi, thanks for that , no its a newer  immunotherapy its a combination of nivolumab and relatlimab 

  • I’ve never heard of it, it’s good to know I’m in Scotland I’m not sure we will get it or not. I hope you feel ok with this and it works well.

  • So am I im in  lothian area 

  • That’s good to know I would be going to the Beatson Glasgow but I’m still waiting for my scan. Then will find out what’s happening.