Melanoma spread to lungs - immunotherapy didn’t agree

• Hi I was 3B, had 7 of the 9 immunotherapy. 
• My last scan has identified something on my lung, after PET scan and going through an MBT review, they are still not sure if it is Melanoma or not.I now have an appointment with a Respitory Team at my local hospital and then a follow up with Melanoma Oncology in a few weeks.Terrified!
• Keep in touch and we can compare onward experiences.
• Take care and try and stay positive

Hi, thanks for the reply I’ve to get another ct scan end of Aug then waiting for results. Then taking it from there as I’m not sure what will be happening. Glad you’ve got an appointment with the Respiratory team then a follow up with your oncologist. It’s all the waiting that does your head in. I hope all goes well and yes definitely stay in touch and we can compare as it’s good to know how other people are dealing with the same type of thing. Best wishes and staying positive 

Hi am kind of similar I was stage 3c nodular melanoma now stage 4 inoperable, i had 3 rounds of pembrolizumab  that didn't work and its spread to my pelvis skin groin and lung , im due my second dose of opdualag in the morning  hence why I cant sleep tonight , the pembrolizumab cause hypothyroidism and left me with severe fatigue and a terrible dry mouth, 

Hi, good luck for today with your second dose of opdualag I’ve never heard of that is it targeted therapy? The pembrolizumab damaged my pancreas my bowel and also my heart. I also have a very dry mouth still have. I hope ever goes well stay positive 

Hi, thanks for that , no its a newer  immunotherapy its a combination of nivolumab and relatlimab 

I’ve never heard of it, it’s good to know I’m in Scotland I’m not sure we will get it or not. I hope you feel ok with this and it works well.

So am I im in  lothian area 

That’s good to know I would be going to the Beatson Glasgow but I’m still waiting for my scan. Then will find out what’s happening. 

You might be interested in the BBC documentary about George McGavin who had stage 3 melanoma and was given Targeted Therapy and it worked for him. 

Here is a link to a Vimeo upload of the doc: https://vimeo.com/338412027

The documentary is described here.

https://www.bbc.co.uk/programmes/m000696j 

Although Targeted Therapy did not work in the long-term for me (I got a recurrance after I stopped taking it), it seemed to work while I was taking it (no new cancer growth) and also everyone is different. Targeted Therapy saved this guy's life. I found it an uplifting watch.

I hope you get the support you need.

Warm wishes,

Dots

Thank you very much I will give this a watch, I need to be in the right frame of mind as I’ve good days and bad. I’m glad it helped you, I know what you mean as everyone is different. We can only hope. I hope you are getting the support you need also. Take care