Melonoma stage 3 & back pain?

Hi Andyy13 I had back pain before I got my diagnosis that my melanoma had spread to near my spine I was initially told I needed an operation to strengthen my spine.  I didn’t like the idea of an operation and was instead started on the dam trab tablets. I took them for 7 months and the tumours disappeared near my spine and lungs. I then had ipi and Nivolumab and now after 2 years I am on just Nivolumab. Most of my tumours have gone or are dead . I am not in any pain. I fact as soon as I started the treatment the pain started to go so hope when you get the results of the scan you will be able to get the appropriate treatment. I was initially given codene to help with the pain and it worked for me but I know it doesn’t agree with everyone. I wish you all the best with your treatment ,

Hi thank you for your reply! 
I have been given codine and tramadol and it’s working alright for the pain

can i ask what was your pain like as mines sort of deep don’t feel like muscle pain and sort of stops me in my tracks 

My pain was quite bad.  I remember my husband driving down the motorway to Devon and I was suddenly doubled up leaning against the dash board. It wasn’t there all the time and I also at the time didnt  know it was melanoma. We continued our holiday but I did feel weak and ill. I also lost my appetite. I have just been for treatment this morning and then managed a two mile walk along the river. Please feel free to ask me anything during your treatment. 

UPDATE

PET SCAN CONFIRMED STAGE 4

spread to liver lungs and spine spread a lot!

some how my spine had fractured it’s self with explain the pain the joys

been admitted to hospital now waiting tests results and treatment 

So sorry to hear your awful news. No wonder you had such bad back ache. I hope they sort your treatment out and it starts to work.  

Hi

I'm really sorry to read your latest news. It's not what any of us wanted to hear.

x

Hi Andyy13, so sorry to here your news, I hope your hospital has got your pain under control. I’m hoping your wait for results and treatment starting is not too long. I’ve found that period between bad news and starting treatment one of the most challenging, I’m hoping you’re getting your head around things and moving forward with hope and strength.

If you're still with us Andy, please feel the support of everyone on this board. I feel horrified at what you were thrown into so quickly, it could happen to any of us. If you are able to, please let us know how you are doing. 

Cindy