I've joined this group to support my husband who has recently been diagnosed with lung cancer. It's an adenocarcinoma with no mutations noted. It's stage 4 as in his r lung and metastases to chest lymph nodes and left adrenal gland. He's been offered carboplatin and permetrexed as chemotherapy. Just wanted to ask if anyone has any experience of this chemotherapy? He can't have immunotherapy due to COPD and RA.
Hallo Jules
I had this permutation of chemotherapy awaiting an operation on my right adrenal gland. They couldn’t operate so I had SABRE instead (very targeted radio therapy). This was a secondary from adenocarcenoma.
Anyway, the chemo was not nearly as bad as I expected. The cancer centre gives you anti nausea drugs and steroids to overcome any side effects. I had few side effects and although I only had two treatments it was manageable. They are very careful about the dosage as each session is carefully planned just to suit you. At the time they give the chemo, they monitor you carefully and looked after you very well. At our centre they also give you details of a dedicated line that will deal with any emergencies, day or night. They give you a large information sheet about all the possible side effects but pointed out you don’t have all of them. It’s rather individual
I have COPD as well so no worries there at all.
From what I understand everything is very carefully planned and dosage monitored. For support my husband was just around and helped when I needed it, doing the odd bit of shopping. I rested when I was tired and tried to eat healthily. Fruity tastes were very good as I had a weird taste in my mouth.
I hope this info is useful but do ask specific questions as well.
Best wishes Daisy
