Recently Diagnosed

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Hi everyone

I was formerly a member of the Oesophageal Cancer forum here in support of my dear late Mum and found it so helpful.

Little did I know that I’d be needing some support of my own here at a later date.

So I’m now new to this group and have recently been diagnosed with Lung Cancer. I also have a shadow on my spine and I’m waiting for more tests to determine if that is also cancer.

I don’t yet know which type of lung cancer it is. I only know I have a 4.5cm tumour on my right lung and two smaller ones on my left lung. I’ve had a chest X-ray followed by a CT scan which picked up the tumours and I’m now waiting for appointments to come through with the respiratory team to find out more details. My GP has fast tracked the request so I’m hoping it won’t be too long but I’m on pins at the moment waiting. 
When I was first told I was devastated as is my husband, having had a few days to process, tell the kids and our family and friends I’m feeling stronger and so loved and supported. I’m in limbo now with the not knowing what’s next and I find that scary.

thank you in advance for any wise words and support you might give

Jools Blush

  • A little over two month ago I had an 8mm taken out of my right lower lung. This is following 80mm bowel removed last April.  I'm feeling fine now back to normal going about my life as usual. Stay positive Jools you have lot's of friends on here 

  • Hello , I'm new to this too . I've been told I have lung cancer and COPD and something is on my liver . I've had my ct scan , pet scan and lung function test . Today I've had an MRI on my liver. I'm scared not knowing what the future holds. I've been reading alot on here very positive and supportive,  knowing other people are feeling the same .

  • Hi

    thank you for your reply, after my post earlier I suddenly had a really negative day and had a bit of a meltdown. I’m sure I’ll feel better once a plans in place it’s just so scary heading in to the unknown. Is lovely to hear your positive story I’m so happy that you’ve had a little normality. I know I’ll get lots of support here, you take care and stay well, Jools 

  • Hi

    thank you so much for replying, I already feel as though I’m not so alone in this and I truly appreciate that. I’m so scared too, not having a plan yet is so unnerving. Once I have that I’m sure I’ll feel better about things. You take care and stay well xx

  • Hi I was diagnosed on Christmas eve waiting to see oncology  which is 21 January  the waiting  is awful  not sleeping well at all 

  • Hi jools, I’m in same boat as you, diagnosed New Year’s Eve. Tumour in lower right lung and two upper plus looks like spine and other places. I’ve been here before with tonsil cancer two years ago. I know it’s easy to say but try and relax, yes waiting for some people is hard. I always tell others worrying about things you can’t change is a waste of time. I really hope things work out for you and I’ll be keeping an eye out to see how with both get on

  • Hi

    Bless you, I’m so sorry to hear that.  it’s the waiting in between that’s hard isn’t it, I’ve not been sleeping awfully well either. Doc gave me diazepam but I don’t want to take it till I’m desperate. Take care.

  • Hi Brian

    i know what you’re saying makes sense but my brain is literally pickled. Sad to say I’m a ‘googler’ and it really hasn’t helped me at all. I’ve seen my scan results and googled the big words and I can only think of the worse case scenario now. I know it’s ridiculous but I figure if you think the worst in can only be better than that can’t it. Thank you for replying, it’s helped a lot to hear some logic, take care.

  • Joolsg, I’m also guilty of googling , I agree expect the worst and it can only get better!. I think it helps that I’ve been through this before albeit in different way , unfortunately this cancer appears to be worse but we can only wait and see. I hope you get some sleep as that helps , even wee power naps

  • Hi there . I have had all the scans etc, and was waiting for pre op and date for removal of nodule in right upper lobe. Had my last scan with contrast in 30th dec, and today I’ve had a call saying that my surgeon wants me to have a liver mri tomorrow. It has set me back and I’m now so panicked I can hardly breathe . I was positive and looking forward to the surgery to remove the cancer on my lung, now this has set me back to when I was first diagnosed . As yourself, I’m so scared now . I hope you get thru all of this nightmare lots of hugs to you xx