Not dying of cancer but living with cancer

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Needed to tell someone what’s happening to my wife and just share the experience… 

My wife was diagnosed with stage 4 lung cancer may 2022  …. It’s also in her lymph nodes , spine , bone marrow , hip and lots of lumps …so straight away into palliative care ….at the time it was the end of the world but she is a very brave woman and just got on with things ( I was in pieces )  I stopped work to be at home with her and do whatever needed doing .

She has had 1 round of radiotherapy on her spine ( they thought she was going to be paralysed) and 7 lots of chemotherapy and immunotherapy that seems to have squashed the cancer for now  but the side  effects have been pretty serious. She has liver , thyroid  and pancreas issues and suffered kidney failure…..(nearly started dialysis but her kidneys have started to get a bit better now )  the latest  is that her stomach is constantly upset so we are now seeing a gastroenterologist….  It’s seems to be never ending but I’m just happy that even though she’s terminally ill she still has a really good quality of life and is in no pain , so I consider us lucky , which has got to be the strangest but truest statement ever …… we both know that she can never be treated for her cancer again as her kidneys won’t be able to take it so we are just almost pretending that nothing is wrong and just trying to carry on with our normal lives as much as possible even though our world could come crashing down at anytime …..the only thing that I’m struggling with is the fact that she can be a little bit moody / angry with me and really forgetful ( normal married life maybe Thinking) … ..but if that’s all I’ve got to put up with long may it continue and as long as she’s around to tell me off I’m quite happy ….. 

Anyway my point is I think that when you first get the diagnosis your world ends and you can’t help but have these awful feelings but eventually you realise that everyone is different and how they react to each treatment is also different ….so you just have to except it and just try to keep moving forward and try and deal with whatever this awful sickness throws at you … my wife’s favourite saying is that she’s not dying of cancer but living with cancer … 

stay strong everybody and keep fighting the fight …..

  • I'm glad I read your post. It throws a different light on things, no matter how bad things can get. My husband has been diagnosed with lung cancer a genetic one not related to smoking. 

    My point is I am very angry about it all. Why him etc. but I'm being to live with it. We spend a lot of time laughing as we always have, but he laughs at me not so much with  me. 

    His cancer is being treated with a view to surgery. Hope is all I can do. He's in no pain and I admire him more and more. He's only 59, I want another 20 years with him. 

    Must stop now as I'm rambling. I just wanted to thank you 

  • I was also very angry with the world ….. but soon realised that being angry just made things a lot worse ….im a firm believer that my wife’s positive mental attitude to her illness only helps and the more I can do to make her life as happy and stress / pain free as possible the better ….my wife is only 63 and I’m also hoping that she’s around for a lot more years Smiley going on this journey has made me a lot more tolerant and accepting of other people ….. because you never know why someone behaves the way they do as they could be going thru the same things we are ….. in some ways having this illness hanging over us means we try to make the most of every day , which is something that doesn’t normally happen as our lives are so busy …

    anyway stay strong and keep making your husband laugh …. 
    And rambling is never a problem …..it’s difficult to put down all these feelings in text …. 

  • I'll try my best. Good luck to you both.

  • Your wife’s a very brave lady and a fighter and I think that’s half the battle,I feel guilty replying as I’m just starting my Prostate cancer journey and mine’s caught early,I felt the same why me  if it’s not enough having RA,but I will fight all the way,sending Heart️ to all your family,and this forums a godsend xxx

  • Thank you for your kind words and good luck for the future my friend….. I’m hoping you have lots of good people around you to support and help you  thru this ….. I’m glad you caught yours early enough  to receive treatment ….. stay strong and keep smiling . 

  • Thank you for sharing. It must be very hard watching your wife go through all this. She has the same attitude as me. I have been living it for over 3 years and had chemo, immunotherapy, a big op and radiotherapy. Some of the side effects are horrific. But if you can get times with good quality life it is worthwhile. My husband is lovely but l am afraid the drugs and cancer make irritable at times. I apologise and he knows l don’t mean it. So please don’t take it to heart if sometimes your wife is moody or angry. My husband just laughs if off. I hope you are able to take it day by day and that you and your wife can find something to laugh at every day.

  • Thank you for your wise words ….ive got into the habit of telling my wife that’s she’s not being very nice and then just take myself out of the way .. and when I come back  I always get a sorry and a smile …….i always try and put myself in her shoes and I know  I’d be far worse ….im also making sure that we always have things to look forward to and we are doing all the things that she wants ….. even went to see a ballet and she was so impressed that I only fell asleep once …. 
    and 3 years for you !! You’re smashing it ….. please pass my best to your husband and enjoy the rest of the weekend…. 
    and keep doing what you are doing ….. 

  • Second year into our situation. 

    Husband was given two years last January but since then bowel cancer has been removed and liver cancer shrunk by a quarter.

    Before diagnosis I had been starting to realise that maybe our relationship wasn't working anymore and I hated where we live and wanted to move, but before I could discuss or communicate this to him, he was given two years to live.

    Obviously I didn't say anything and just made up my mind to help him on his journey as he is a good person. But it's difficult, we live like roommates and my life seems stuck in a limbo. I can't make plans and feel lonely sometimes. It's no use talking to him as he doesn't discuss his feelings at all never has. I want to do the right thing and be by his side but the uncertainty of it all is making me question this decision. 

    This may seem very selfish I don't know as have never been in a situation like this but it feels good to just get it off my chest and would appreciate any help support or advice from people who've had the experience. 

    Thanks 

  • My mom also has lung cancer, she’s 52 and a non smoker. Honestly just seems so unfair! I feel angry, sad, upset - so many emotions. Life is hard and cruel I think. Hope your husband is coping well, I have only come in here to find positive stories, everyone’s journeys are so different but just feel so sad for everyone going through this horrible thing! x 

  • There’s no rhyme or reason to this horrible disease and the more you talk to people the more you realise that there’s always hope ….my wife has lived over her 2 year prognosis and is doing well and living a good life ….in fact  I’ve had man flu for the last few days ( and we know how bad that is Rofl) and she’s been looking after me ….all very surreal…. 
    I went thru all those emotions at the start and still do now and again but that’s ok as long as she stays as active and happy as she is I can deal with it all ….stay strong and keep smiling ….and send our love and best to your mum ….