Mum has SCLC

Hi, I wanted to reply as you've not had a response yet. My mum has lung cancer with bone mets, but is on a different, shorter journey than yours by the sounds of it.

A lot of your questions are patient-specific, and cannot be answered by others as everybody's journey is different and it's very hard to predict the future.

For us, our journey has been incredibly short from symptoms to actual diagnosis, to where we are now.

It's great to hear that your mum responded well to Chemo. Enjoy all the time you have, take one day at a time. Good luck on your journey.

Mav

Hi Mav

Thank you so much for your reply.

I’m so sorry to hear about your mum. I guess none of us really know how long we have and that’s why it’s so important to make the most of every day. 

I am struggling with the lack of control in our situation, and the lack of knowledge. I guess I just need to accept things as they are and take my own advice and take each day as it comes.

Sending love x

I think all you can do is take one day at a time, and really value each one you have.

Hopefully the post-radiotherapy scan will show positive results, and if you want to know, perhaps the Oncologist could give you a new prognosis based on the results they will see, if you want to know. I hope it is a good an outcome as possible for you under the circumstances. Remember any prognosis is a 'best guess'.

I'd sooner think the worst than be optimistic and then disappointed, then just be grateful for each day we are given.

I think my mum would like this journey to be short rather than long, and just doesn't want to suffer any more than she has to. I respect that.

Hi, my dad was recently diagnosed with SCLC and I agree that a quick google is scary! There are negative and positive stories....My aunt died of SCLC 2 years after diagnosis, a colleague -  6 weeks after diagnosis......but I also know of people 5 years later living their best lives!! I guess we are all different and how people respond to treatment,

The hardest thing at this stage in the journey is the lack of control, wanting ask a hundred questions but not being invited to the appointments.  When I ask dad, he says "oh I didn't ask that" or "what will be will be" and it is heart breaking.

Dad's treatment is delayed as he has low sodium levels (apparently caused  by the tumour)....it has all been quite a shock as he only found out about the tumour when he had a chest x-ray for something else!

Thinking of you - and everyone going through this journey.

Nance x 

Hi, just wondering how your mum is doing?

Hi Nance

thank you for getting in touch. Mum is doing really well thank you. She is now 5 weeks post radiotherapy, which again she coped with remarkably with minimal side effects. 
She is currently well, no obvious signs of active cancer although her radiotherapy dr told her she may a year before it recurrs. 
So we’re now trying to push it to the back of all our minds and enjoy some time. We’ve just had a lovely weekend away with all the family, walking, eating and doing all the things we all love. 
She is back to see the Oncologist in June and will then be rescanned so the stress will no doubt start again.

How is your dad? Has he managed to start treatment yet?

Jo x

This all sounds really positive! Hope all goes well with scan in June xxx. 

My dad is still going through chemo and radio.  I have to say I was expecting him to struggle more as he’s sailing through.  He’s fatigued & sleeps loads but is ok otherwise.  There again I worry he’s just not telling us everything.  Waiting for the scan and results is going to be tough as he’s convinced it’s not working! 

take care x