Hi. I'm new to this and I suppose I'm looking for some sort of support. My Mum has lung cancer(incurable). She was diagnosed around 3 years ago now but stated from the very beginning that she did not want to know what stage or how long she may have. I understand this is her way of coping with everything but i find it really difficult not knowing what the proper diagnosis/stage is. Initially she was given immunotherapy until it stopped working then she was on a trial drug which has aslo stopped working. What we do know is there is a part of the cancer that has grown in her right lung and they now want to try radiation for 5 day's. She also has Adisons disease and is on medication for that aswell. Lately she has had a really sore head so they've done and MRI to see if there's cancer in her brain. She spends most days in her bed and is in quite alof of pain. She is very stubborn about getting any outside help for anything, i feel so helpless. I just don't know what to do to help or what help is even out there. I can't bare to see her in pain. She has specificly told her consultant's that doesn't want to know alot but that also means we as a family don't know either so I'm constantly thinking the worst. Any help is appreciated. Is anyone else in the same position? How did they help or cope etc?
Thanks,
From a Loving Daughter who is so scared right now and doesn't know where to turn.x
Hello Paige,
A very warm welcome to the lung forum, although I am very sorry indeed you have the need to join.
I've read your post carefully and would like to suggest initially that you contact Macmillan for some practical help, support and advice to help you through your current situation as well as helping your Mum.
I've inserted a link below which will open up details of the ways to make contact and what Macmillan can offer you which I hope will be useful for you.
I send you my best wishes, and remember you can always come back here for anything you want.
Derek.
https://www.macmillan.org.uk/cancer-information-and-support/get-help/macmillan-support-line

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Whatever cancer throws your way, we’re right there with you.
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