Hello,
new here. Mum has recently been diagnosed with what is "highly probable" lung cancer. Biopsy not possible to confirm 100% as she has severe COPD and prone to lung collapse.
Just wondering if anyone else has had this experience where they are being told that cancer is highly probable and going through motions of oncology appointments.
We've had some talk of radiotherapy but at most recent appointment there was suggestion of this being too damaging to lungs and possibility of no treatment at all. unfortunately there was no explanation of what no treatment actually looks like. I think I need to speak to the Macmillan nurse that was in the appointment with us maybe.
Either way would appreciate someone else's insight if they have had a similar experience to this.
Hello Lulu
Welcome to the group although I am sorry to hear the circumstances are not better.
My mum went through X-rays, CT scan, PET scan and biopsy before we had her full diagnoses. We were fortunate this took approx 6 weeks. Initially radiotherapy was suggested but the cancer had spread to her lymph nodes in her chest and other lung.
My mum was offered chemo but advised she probably was not well enough. My mum choose to make the best of being ok and did not want to be poorly from treatment. So since July we have had the full diagnosis and no treatment.
My mum on the whole is doing ok. It is a very emotional ride.
I would advise to take each step at a time and ask the nurses/ consultants ect any questions you have.
People on here have very different experiences with treatment ect so just try to get all the info you can.
I hope you hear soon. Take care of yourself x
Hi to both of you. I'm so sorry to hear of your situation Lulu. Hope that what Milie has said about her Mum being OK despite not having treatment offers some relief. I have things in common with both of you, in that my Mum also hasn't had a biopsy as she was too scared of the potential of collapsed lung (she also has COPD but they didn't mention anything about that increasing the chances of that). She was offered a lobectomy but she decided against it as it sounded very invasive for such a small cancer. She may be offered SABR but she's already set her mind against it as she thinks it will have awful side-effects., although she hasn't actually met with anyone about it. It's reassuring to hear Milie say her Mum is till doing OK without treatment. xx
Hi, my gran was told on the 13th Nov that she very probably had lung cancer after being admitted to hospital for pneumonia.
She had had an X-ray earlier in Nov for another reason and this picked it up. We have just been told today there is nothing they can do and it is palliative care. Don’t let this scare you, my grandma is at home. I always imagined palliative care to be someone in a hospice really very unwell but they help manage pain as well. Which is all my gran needs atm she is at home, she can’t walk far but she is still up making a cup of tea.
She has been told today Macmillan nurses will visit her three times a week and offer her pain relief but as far as treatment goes she is too weak. It’s very surreal as apart from seeming a little tired and not eating much she seems to be over wise fine.
I think you just have to wait and see what happens as everybody is different x
So so sorry you have had that news today. In terms of the surreal feeling, maybe you're still in some degree of shock. As you say, everyone is different. xx
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