Reluctantly joining this club

Hi Thumpz welcome to the group but so sorry you find yourself here. My lung cancer is different to yours, but I can relate with how you are feeling. For me telling my children was the worst part, my youngest was just 13, and it was the hardest thing I have ever had to do. 

Sorry to hear your cough has got worse, shoulder pain is a classic symptom  as well. Stress can make the symptoms worse, but you should see an improvement once the treatment starts. 

Good luck for the appointment on Tuesday. Please let us know what is decided, I am sure there will be plenty of people here to share their experience with you. In the meantime you can read our journeys by clicking on our profile picture which will take you to our profile page. X 

Hi Thumpz

I have NSCLC.

I agree about the bone biopsy being unpleasant. In fact I found it downright painful.I

If its any help, once they get you on chemo and Immunotherapy you and your wife will feel a whole lot better emotionally.

It's a relief to have a plan to follow, if that makes sense.

Well I had my appointment with the Oncologist , and I have stage 4 Lung cancer.

I will start a course on 2 chemo drugs and 1 immunology drug within the next 2 weeks.

Had my bloods taken on Friday to check that im ok to start the course, plus I had to go on to insulin as my blood sugar is high, mainly due to the steroids that I'm on.

I will be going to Western Park Sheffield.... Does anyone have any experience of this place ?

Keep well everyone

Hi there Thumpz I’m also newly diagnosed ( last Wednesday ) from an an X-ray following what I thought was a chest infection . I’m still waiting for all the tests to take place so they can tell me if I have a treatment plan etc and the details about my tumour …. Telling family and friends is so upsetting , but like you I have a supportive husband … I spoke with the support line yesterday and they got me out of a very dark place indeed so I encourage everyone to speak with them they are amazing if you are having a low day ….good luck with your treatment plan x

Sounds as if theyre putting you on a similar regime to me -  Two lots of chemo and an Immunotherapy.

They usually do it like this:

Will likely give you a vit b12 injection at some point.

I  take steroids the day before, on the day and the day after treatment. 

On the day,  they give me an anti sickness pill. They then give me the immunotherapy first (takes about 20 mins) then a flush, then the 10 min chemo, then another flush, then the 1 hour chemo and a last flush.

They then send me home with more steroids to take beforee the next round, anti sickness  meds, folic acid, adcal for bones, plus mouthwash.

I had sickness after my first session but in hindsight i wasn't taking  the anti sickness meds as instructed. I take them properly now and have no sickness 

I usually feel OK on the day of the chemo and for two days afterwards, I then suffer fatigue for about 5 days, then I gradually start to feel  better again.   

Hope things go OK for you.

The chemo sessions themselves are fine. The most stressful part for me is having the blood test a couple of days before, there's an anxious wait of wonderirig if the levels are alright to go ahead with the treatment. I've had 3 rounds so far and touchwood, still have my hair!

Thumpz, meant to add, if you have any more questions feel free to ask .me.

I'm also Stage 4. Diagnosed in May.

Do you know if you're sclc or nsclc?

Ella

You will feel so much better once you have a treatment plan.

X

Elly x

I hope so Harebellle . This no mans land wait is just dreadful isn’t it .thank you for your reply x

Many thanks and the best of luck to you too