Hello, I’m another newly diagnosed and ready to fight.

Hi LiamMcE and a very warm welcome to the online community

I had a different type of cancer to you but I do understand what a worrying time this will be for you. 

I noticed that you said that you "still don’t quite understand other than what I have read online" and I wondered if you'd been assigned a CNS (cancer nurse specialist)? If so could I recommend that you give her a call tomorrow so that she can answer any questions that you might have before your treatment starts on Tuesday.

Wishing you all the best

x

Hello, I don’t yet have an assigned nurse but my wife and daughter are both nurses, I also have an outreach epilepsy specialist nurse who keeps in touch because my epilepsy is very bad, thank you for taking the time to say hi, I thought I was left hanging and was very close to looking elsewhere for advice. 
kind regards and best wishes, Liam.

No problem Liam

Let us know how it goes on Tuesday and I'm sure the other group members will be happy to answer any questions you have or share their treatment experiences with you.

x

I saw a CNS, a very nice lady, very informative. I saw her just after I had seen the surgeon, we had a lengthy discussion about treatment, the surgery was atop his list, finding an anaesthetist was a problem but an ego had put himself forward. To find one was a problem as I have major problems with epilepsy, not a day goes by now without a seizure, so they had to find one up to the challenge. My cancer is only in the lower lobe of my left lung ‘thankfully’ and the removal might be the end of it, I can’t say I’m not afraid but find myself reassuring and mopping the tears of my wife of 40 years, the CNS nurse referred me and my wife to come to Macmillan, I know of you but not of the support you might offer, my surgery is in four weeks.

LiamMcE

Hi Liam

I'm glad to hear your appointment went well and they are looking for a curative outcome with your surgery.

As I had a different type of cancer I don't have any experience with the type of surgery that you'll be having so it might be an idea to start a new post asking for others in the group to share their experiences with you.

Do you know in what capacity your CNS suggested you contact Macmillan as they have all sorts of support to offer?This link takes you to the main page which you could browse to see what's available.

Wishing you all the best with your upcoming surgery.

x

Thank you Latchbrook, I shall try to navigate my way around here!

Just give me a shout if you get stuck

Hi Liam

They found a tumour in my upper left lobe 2 months ago and it was a complete shock. Almost 3 weeks ago I had that whole lobe removed. I was so scared about the operation and how i would be after. The operation went really smoothly, i was in very little pain after and was on my feet the next day. Yes i had good pain medication but the most discomfort was from the chest drain. 5 days after the op i flew home from Southampton to Guernsey. I'm now walking about 2 miles a day, not needing any pain relief, going back to work part-time in a week and can drive again in a week.  My wounds are uncomfortable at night if i lie on them and i do have the odd low moment but am generally doing so so well. 

I hope my experience gives you some comfort about the operation and after and good luck. If you have any questions about how i got on, feel free to ask. 

X