Hi all I’ve joined today as I am really struggling. My mum got diagnosed a week ago with squamous cell carcinoma of the lung. She went to see the respiratory doctor yesterday , he’s told her she needs a PET scan, heart scan and lung function test before they can decide which course of treatment to give her. Im scared because her tumour is 102mm x 60mm which I know is considered large. The lung cancer nurse has told me not to worry with regards to the size of the tumour, as it may not make a difference, is that right? She is also struggling with nausea at the moment is that a common symptom, I hate seeing her suffering like this. Any advice/help would be greatly appreciated xx
Hi Toot22, welcome, but sorry to hear of your mum. All of the tests your mum is having, are all the usual tests we all get at the beginning of our journey. You say she’s got a respiratory doctor, so I guess she hasn’t seen an Oncologist yet. You won’t get the treatment plan until she see’s the oncologist. Sometimes this feels like it can take ages to get to this point, but all of these tests and scans are needed before they can decide which plan of action to take. As to the size of your mums tumour, all I can tell you is mine wasn’t much smaller than your mums, and I also have several small tumours in both lungs. I wonder if her nausea is due to the worry and stress. I know when I was first diagnosed I felt sick, and couldn’t eat, but I’ve certainly made up for it since.
This is a very stressful time for you both. This is one big rollercoaster ride, with many ups and downs, but it will get easier, once you know what the plan of action is. You must make sure to take care of yourself as well. There is a Family and friends - Discussion Forum which you may want to join, where there are people in a similar position to yourself.
Take care
Hi Chelle Thankyou for your reply I really appreciate it at the moment. No we’ve not seen a oncologist yet just the respiratory doctor. Mums booked in for lung function on Monday but no news on the other tests yet. Does it mean because my mums tumour is large she can’t be cured? I’m just so scared she won’t last a year x
Bless you, it is so scary, and your head will be all over the place. Only your mums Oncologist can answer that question, because everyone is different. But what I can tell you, is that lung cancer treatment has come such a long way in recent years. There are so many treatments available, and people are living longer with the disease.
My mom was diagnosed back in May with around the same size tumor but I think my mom was a little bigger, hers have grown towards the lymphoid by the heart.. she started chemo in July to try and string the tumor to see if they could operate... after her 6th session of chemo they booked her for a CT scan 4 weeks after which the results came back the chemo hadn't worked.. they then rebooted for 4 weeks after to then find it had grown and booked emergency pet scan 4 days after to which then it had grown again.. unfortunately for my mom theyve given around 12 months at the most for survival. Everyone is different and things work differently for each person.
I wish you and your mom all the best and keep positive
Lots of love
Hannah x
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