recently diagnosed

Hi narladog2cbd9c  welcome to the group but sorry  you have had to join us here. Being told you have cancer is very traumatic. When I was told I felt very odd, the shock I think, but it felt like it wasn’t happening to me but to someone else and I was just watching. Telling my family was the worst part, especially my children who were just teenagers themselves. 
Lung cancer treatment has come such a long way in recent years, and many of us here are living with lung cancer on treatment for many years. This feeling you have at the moment of fear and panic, will ease. Coming here to the forum and talking to other people who are going through the same thing will help. Here you will hear from members who have been through treatment and are now living cancer free, and others like myself who are on long term treatment. By clicking on our names you can go to our profiles where you can read our stories. 

Macmillan also offer a buddy service for people who are just starting out on their cancer journey. This is where they match you up with a volunteer who will call you once a week for 6 weeks, to chat with you about your diagnoses and your up coming treatment. Members have found this to be a very valuable service. If you call MacMillan’s support line on 0808 808 00 00 they will be able to arrange this for you. 

Hi there, thank you for your reply, yes i think i am still in shock ,and also the hardest part was telling the family,My husband is still in denial, i know its happening ,but feels so surreal, i have been told that unfortunately there is not much they can do,as its gone into the lymph nodes, so my prognosis is anywhere between 3 months tho just under a year, i feel as if i am autopilot at the moment , i suppose its not really hit me yet, i have good and bad days, sometimes i cry alot, and other days i have been doing practical things ,like sorting out paperwork so it makes it easier for the family, i have even visited the funeral directors, to tell them my wishes, im trying to take as much off the family as i can ,to make it easier for them. 

Please do call the MacMillan support line, they can help you through this x 

Hi 

I’m very close to the same situation mine is recurrence of endometrial cancer 

I’ve had a course of chemo x6 but the cancer is growing quicker than they can give me chemo so I’m about to start what they describe as a brutal immunotherapy treatment knowing it will not cure me just hopefully stop it growing Although there is not a lot of hope it will 

I’m going through the same shock and emotional roller coaster 

tomorrow I’m going to the local Maggies to seek practical help with wills , power of atourney etc and access to a psychologist 

im exhausted I play it down a bit when telling my son and daughter in law but keep bursting into tears when I think of leaving my  fabulously lovely life especially my gorgeous granddaughters ( 7 years and 20 months ). I’m 66 and very happily married to a strong and supportive husband but I simply can’t get over the shock 

hi Scared Bunny,

i Know exactly how you are feeling, my husband is also battling his own cancer issues,but thankfully his is treatable, he is in denial where i am concerned, i suppose i am as well, no amount of talking about it makes it any easier, i get frustrated as it just seems to have wiped all my energy out of me, i too have sorted out paperwork ect, even been to the funeral directors to give them my wishes, mainly so there is not so much for the family to have to deal with,i too have grandchildren,and , the thought of not being around for the major milestones in thier lives ,breaks my heart, cancer sucks 

Thank you so much for replying 

it’s so comforting to not feel alone 

No matter  how great your friends are you can only really know if you’re going through it yourself 

I think it’s  the grandchildren thing that gets me  most  I just can’t cope with the thought of them being upset , seeing a sick me and be not being there to cheer on the life achievements 

I’ve been to the Maggies centre it was nice to talk to someone 

I was so tearful and have been for a while they did point out the Letrozol suppressing oestrogen is likely to be exacerbating the tears and the bloated feeling and loss of appetite is likely still recovery from noro virus  I had just a couple of weeks ago 

which has made me feel a bit better I’ve got a referral to a psychologist but there’s a waiting list ‍♀️

no help with practical paperwork so I’ll just have to focus my mind and just get on with it but they did suggest waiting until I  started the immunotherapy because things will settle down emotionally 

I know exactly what you are saying , and yes its good to be able to talk to someone in the same boat, i am on fluoxetine and duloxetine, it helps with the emotions , i also have a tablet called  lorazepam ,i just put it under my tongue when i am feeling really anxious and anxiety kicks in, it does help to calm me down, do you have any nurse or drs support from the hospital ect, i have a brilliant network of medical people who go through meds and everything with me , i also have a visit every week at the moment from one of my palliative nurses, whats your appetite like? mine is really poor, but they sorted me out with some ensure drinks which are quite nice, they have all nutrients that you need, they do them in vanilla ,strawberry,banana, and coffee flavour, i dont have the coffee ones but i do the others, they taste alright, feel free to message me any time,take care  

Thank you the lorazepam sounds like a good idea Does it make you sleepy ? 
my appetite has been up and down but mainly because I’ve just had norovirus 

I think / hope someone will go through medications with me next week before I start the immunotherapy 

it’s really hard I wanted to have the chance to do immunotherapy and then when they said that’s the plan I panic !

then they say an appointment next week or the week after so I email pleading for next week then when they phone with an appointment for  next week I panic !

it’s so rediculous when they are doing everything I ask 

thank you for being there and do message me if I can help in anyway 

sometime I think just writing it out and sending it to someone who understand and listens take it out of your head and reduces the stress 

I was diagnosed with 'incurable' lung cancer in dec 22 and given 12 months. Telling the family upset me the most as well. However I am still here almost 36 months later. I cut down on refined sugar and processed foods and use CBD oil along with my treatment which is a tablet a day. I also take vitamin supplements..NOT multivitamins,they are a waste if money. I get seperate vitamin B,C and a high dose vitamin D. I keep moving,and do excercise as much as possible although sometimes the chest pain and breathing difficulty makes that harder.

Take each day as it comes and try to stay as positive as you can. I know from experience that can sometimes be difficult though.

Take care.