Little treatment

Demand some help with this from your consultant or GP. That is not good enough. You need more support than this. xx

• Thanks but GP had same attitude re bowel when I asked him who was keeping an eye on it as I was discharged from clinic , he said it could be anything when I mentioned pain , I only saw consultant again after i was referred back as it ," lit up " again in PET scan  it's still looking benign but why it's lighting up nobody can say why  , biopsies taken and he'll see me in 6 months !
• Thank you for your kind words of support as I don't have much in the way of support but I manage 

I had lung cancer twice only had operations without the need fir any other treatment because was very early stages .that's me finished until next Yr with ct scans etc it was a Yr ago last month,but main reason for messaging bk is I had pet scan last year which show a light up but under further investigation it was polyps and had them removed  a couple year ago but never been followed up , x

I hope you get get an answer or reassurance from somewhere,but would like to say you sound  like your a fighter as you've came thro so much and your not on the scrap heap , thoughts are with you , sy strong   

Thank you so much for your very kind words, sometimes I think " just give up " but my son and friends tell me NO !  You know I don't feel as though I have come through a lot but my friend says I have , when I sit and think of what I've had as well as cancer then yes I have come through a lot so I must be string , or as my son says " stubborn" and grandaughter says I'm tough 

Thanks again

Hi there , it's because of size and one  of the reports said it was high grade dysplasia  which means it could change is why I'm worried , it's benign and hopefully stays that way , i naively thought they kept an eye on these things you know " catch it early " is their motto but not always followed .

Thanks and I hope you feel better after recovering from operation,  did you have VATS op , wonderful what they can do these days .

Take care x 

Hi Sassay

I really feel thay Bowel cancer is extremely treatable and is very slow moving. 
You deserve a full explanation as to why there’s glowing showing after your pet scan. They do not have a clue what it is like to walk around with that thing in you. So they need educating 

If the PET scan shows that it’s slow moving and they want to monitor then that’s exactly what they should consult you about. If it’s glowing and you want it binned then they need to listen to you and give you an explanation why they are not treating it 

I think it may be worth ringing your colonoscopy nurse there should be a number for you and explain how you are feeling with luck she will be able to give you advice as to next steps 

My nurses were really supportive, I hope that you have the support you need

Best wishes 

Hi there , very true they are not walking about with it  in their body , as far as nurse and surgeon are concerned its benign . Doesn't matter I have had cancer 3 times there is no worry on their part to put me at my ease re bowel , I just feel I've been sidelined 71 yrs old pushed aside 

Apparently oncologist is aware of the bowel part lit up but at moment getting lung cancer recurrance treated was priority 

Take care x 

Oh well. They are wrong and you are right and deserving of an explanation 

You go for it 

I hope that when they explain it’ll make sense. 
I’ve found that medics make decisions for the very best reasons but forget to explain to the person that is actually going through it 

Hi there , it's because I had lung resection , I have atrial fibrillation,  COPD and I'm on Warfarin for life for previous blood clots on lung that  and now cancer has shown its face again in my lung that I'm high risk for operation , how I am managing to get through all that and still can manage on my own i don't know plus arthritis is / osteoporosis in knees and back . It's the fact he said nothing could be done that got me but then it's  not his call , he is a surgeon , should it ever turn malignant is that then down to Oncologist ? 

Sorry it's  a bit long winded but I don't really have anyone else to discuss this with .

               Sandra x