Feeling very low at the moment

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I was diagnosed with nscl cancer in January 2017. I tested EGFR positive and started on Tarceva, which worked for almost 6 years. Late 2022 my scan showed progression.

I have had 4 liquid biopsies to look for a new mutation, all have come back negative. I am now waiting for radiotherapy, I am feeling very low frightened and keep bursting into tears. Though all my treatment I have always been positive. I am in pain now and on oral morphine, which is helping a bit. I’m trying to stay plosive but it is very hard. I don’t know what to expect from the radiotherapy and that is scaring me. Can anyone tell me what to expect from radiotherapy. The waiting for results to come back and waiting for treatment is awful. 

  • Hi Sue

    So sorry that you are having to face this after 6 years. Yes, the waiting is always the worst aspect.

    Please do not think that radiotherapy is in some way a second rate treatment. Radiotherapy is a very effective cancer  treatment in its own right.

    The positive effects of radiotherapy are cumulative, so as the sessions progress, so does the impact on the cancer. The down side is that the side effects are also cumulative, with tiredness being the main one..   You will not feel the radiotherapy being applied; all you will need to do is lie very still on the radiotherapy table..

    i hope this helps a bit.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • I will pray that you have same results as me I only had radiotherapy  because of other health issues.. it was a straight forward  no pain treatment..I got a cough  after treatment  but a dose of steroids  sorted that..fingers crossed  I have positive response  after see oncologist  on 27th of this month. Lwill keep everything crossed,  it was so nothing  to be feared..xx. Good luck stay strong..

  • Hi Kegsy

    Thank you for replying. It’s the not knowing what to expect that is frightening. 
    what you have said does help.

    Sue x

  • Hi Maggie just Maggie

    Fingers crossed for a positive result on the 27th. I’m trying to stay strong.

    The people on here going through the same as you helps a lot

    Sue x

  • It's so true.you go through the same as all the other peeps,  you cry with them,you  overjoyed when treatment  positive..and absolutely  devastated  when 8t isn't.. we become human with this disease  for sure..suddenly other things important..each other..xx

  • Hi  I had radiotherapy, and like  and  I had very good results. It is understandable that you are anxious, and tearful at the moment. Starting any treatment is scary, but being in pain will be adding to your anxiety. 

    Having the radiotherapy treatment is very much like having an x-ray. You lay on a table, and the machine moves around you. You do not feel anything, so please do not worry about that. You will get side effects, but like all treatments this varies with people. Tiredness seems to be the main side effect, and your skin will become rec and sore like sunburn. My tumour was blocking my bronchial airway, so breathing was very difficult. Within days of starting radiotherapy I could breath again, it was a miracle treatment for me. 

    Do please come here and chat with us as much as you need, but if you feel that you need to talk to someone please do call the Macmillan support line on 0808 808 00 00. They are available 7 days a week from 8am until 8pm. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Hi Chellesimo

    Thanks for replying, it really helps talking to people on here who have been through the treatment I am waiting for. The pain and not doing anything is getting me down, although the morphine does help, it does make  me tired. Hopefully won’t be too long before I start treatment

    Sue x

  • Hi Sue,

    Radiotherapy can be brilliant at helping with pain

    When you think about it, it's a form of targeted therapy in itself!

    I had horrendous pain at the beginning and was on all sorts of heavy duty painkillers for months. As soon as I started Radiotherapy the pain melted away. I don't even take Paracetamol at the moment.

    People, myself included, see Radiotherapy as 'lesser' for some reason. I don't think it is.

    I'm no Oncologist but I'm convinced that Radiotherapy has helped me far more than chemotherapy.

    If only they woyld operate on Stage 4 lung cancer (especially after reading today's news on the BBC online health - how the most aggressive calls are in found main tumour) I reckon that with regular gentle doses of chemo,   plus Radiotherapy,  plus debulking my main tumour) most stage 4 lung cancer patients would last a LOT longer than they do at the.moment.

    Oh, and Radiotherapy isnr painful and doesnt last.last long.

    Having lung cancer is very lonely. There doesn't seem go be the same care and compassion shown to other cancers. Expecially by major organisations znd people in general.

    Something came up on my newsfeed a few minutes ago about Dame Deborah James (fantastic lady). It was very interesting and at the end it said 'if you have been affected, click here'

    Which I did. Guess dhat? There were support groups for loads of different cancers, but bo support for lung cancer.

    Yep 

    Lung cancers a lonely place to be  If it weren't for my Oncologist, rhe lung cancer nurses, and macmillan, it would be even lonelier.

    It's OK to feel sad sometimes. Xxxxx

  • Hi Harebelle

    i suppose when you think about it radiotherapy is a kind of targeted therapy. Coming on here and reading everyone’s replies has really helped me, in fact I feel fine about starting it now. A big thank you to everyone who has helped me 

    Take care

    Sue x